In 2015/2016 we provided vital emotional, practical, financial and clinical support to around 7,100 young cancer patients and their families. And we took what they told us about the impact of cancer on their lives to service providers and policy makers to help change things for the better.
Financial and practical support
We awarded 5,500 CLIC Sargent grants totalling £1.11 million and helped families and young people apply for over 1,200 grants from other organisations, unlocking around £415,000 of extra financial support.
Our welfare advice service dealt with over 4,900 enquiries, securing an estimated £1.6 million of benefit entitlements for parents, young people and their partners.
Campaigning and influencing
We launched our three-year Better care for young cancer patients campaign, calling for changes to the health and care system across the UK, so young cancer patients get the best possible care and support.
We provided emotional support to 3,087 newly-diagnosed children and young people.
We gave 461 compassionate grants totalling £138,000 and bereavement support through 331 home visits and 40 bereavement groups.
Our online community, for 16 to 24-year-olds who have or had cancer, continued to grow. We launched our first ever mobile app and a quarter of our members now access the community this way.
Our website's support pages received over 11,300 visits, and we sent out 25,700 resources, over 20% more than last year.
We developed a multi-platform digital resource to help 16 to 24-year-olds deal with the impact of cancer on their personal and sexual relationships, and ran an Ask the expert session for our online community.
Our 10 Homes from Home hosted 1,339 families.
We opened our second Home from Home in Belfast, Amy’s House, for families of young people being treated in Belfast City Hospital, and our first Home from Home just for young people.
We moved our Home from Home in Glasgow, with Marion’s House opening near the new children’s hospital. We purchased a new Edinburgh Home from Home, due to open in 2017 in line with hospital relocation plans.
Safer care closer to home
Our nurses supported 1,072 young cancer patients, attending 7,485 home visits and arranging 7,760 visits by other professionals like community nurses, GPs and palliative care teams.
We published the evaluation by London South Bank University of the Children’s Key Worker Service Evaluation project.The project was shortlisted for a number of awards, and won a Patient Experience Network National Award (PENN) in the ‘Best Charity’ category.
Support in the community
Our social care professionals made 3,661 visits to children and young people outside of hospital: at home, in CLIC Sargent Homes from Home, and in the community.
Our 33 young people’s social workers and 11 community workers supported over 2,800 young people.
Employment and education
Our nurses and social care professionals made just under 2,000 visits to schools, colleges and universities, delivering care to pupils, helping inform individual school health care plans and talking to staff, students and pupils.
Our social care professionals met with children and young people and their parents 422 times to discuss employment and education needs.
Listening to children and young people
We increased opportunities for children and young people to share their views by 14%, with 182 doing so on 1,128 occasions.
Children and young people were key to developing our strategy Aiming high. The ideas and opinions they shared helped shape our direction for the next 10 years.