CLIC Sargent welcomes call to extend all patient experience surveys to children and young people

NHS services for children and young people in England have been placed under the microscope today in a report by the Government advisory group, the Children and Young People’s Health Outcomes Forum.

Created in 2012 by the then-Secretary of State for Health Andrew Lansley, the Forum is an independent advisory group of professionals from across the children’s sector who provide expertise, constructive criticism and evidence- based advice to the Department of Health and the NHS in England.

Today’s report sets out a range of ‘challenges’ to the NHS in England, in areas where the Forum consider that not enough progress has been made in improving outcomes for children and young people. One of these ‘challenges’ is that ‘all patient experience surveys should apply to children and young people as well as adults’.

Lorraine Clifton, Chief Executive of CLIC Sargent, said: “We strongly welcome the Forum’s recommendation that patient experience surveys should be extended to include children and young people. It’s vital that children and young people are asked about their experience of NHS care.

“As a matter of urgency, we now urge the Government to extend the National Cancer Patient Experience Survey to patients under 16, so children and young people with cancer can get the best possible care from the NHS.

“We would also encourage devolved administrations to follow suit, so we can have a clearer picture of patient experience for children and young people across the UK.”

Notes to editors:

For more information, an interview or images please contact Media and PR Manager Robert Westhead at or on 020 8752 2856. Outside office hours please call 08448 481189.

About the National Cancer Patient Survey

The Cancer Patient Experience Survey is undertaken by NHS England and provides insights into the care experienced by cancer patients. It captures patient satisfaction across the country and uses the findings to drive improvements locally.

The 2013 survey was sent to every adult cancer inpatient and day case patient in treatment between September and November 2012, in all 155 hospital Trusts treating adult cancer patients in England. The survey does not currently cover the experience of cancer patients who are under 16.

About childhood cancer

Every day, 10 children and young people in the UK hear the shocking news they have cancer.

Treatment normally starts immediately, is often given many miles from home and can last for up to three years.

Although survival rates are over 80%, cancer remains the single largest cause of death from disease in children and young people in the UK.

About CLIC Sargent

CLIC Sargent is the UK’s leading cancer charity for children and young people, and their families. We provide clinical, practical and emotional support to help them cope with cancer and get the most out of life. For more information visit

Note to sub editors

Please note that the name ‘CLIC Sargent’ should not be abbreviated to CLIC, and that the word ‘CLIC’ should always appear in capitals, as above.