Commenting on the publication of the Children and Young People's Health Outcomes Forum report, Chief Executive of CLIC Sargent, Lorraine Clifton, said:
"CLIC Sargent warmly welcomes today's report which sets out a clear vision for improving health outcomes for all children and young people, including those affected by childhood cancer. There are many strong recommendations in the report which hopefully will be taken forward by the Secretary of State.
"We particularly welcome the four new outcome indicators which reflect the particular challenges facing children and young people. These relate to:
- Time from first presentation to diagnosis or start of treatment
- Integrated care - developing a new composite measure
- Effective transition from children's to adult services; and
- Age-appropriate services - with particular reference to teenagers
"These are all issues that children and young people with cancer tell us are important and we believe it is right that they are prioritised within the NHS and across wider services. We also entirely support the proposal to include cancer survival rates for children and young people within the NHS outcomes framework.
"The need to put in place integrated services for children and young people also features strongly in the report and we were pleased to see reference to key working and ensuring access to this. CLIC Sargent is currently leading a project to develop specialist nurse key worker roles for children with cancer across the UK as we know the importance of coordinated care and ensuring the child or young person can spend as much time at home as possible during treatment."