The National Institute for Health and Care Excellence (NICE) has today (7 December 2016) issued new guidance on end of life care for children and young people.
Commenting on the guidance, Kate Lee, CEO of the children and young people’s cancer support charity CLIC Sargent, said:
“Although survival rates for young cancer patients are over 80%, it remains the single largest cause of death from disease in children and young people in the UK.
“When the worst happens it is vital that the young person and their family are fully involved in planning their end of life care, so they can make the most of the time left they have together, and for family life after they have gone.
“CLIC Sargent welcomes this new guidance, which has a focus on the specific and very different needs of end of life care for children and young people.
“We are particularly pleased that our suggestions to NICE that young people are supported with making plans for their social media profiles after they have died are included, and call on social media companies to look at their processes to support their young users with this.”
Today, 11 more children and young people in the UK will hear the devastating news that they have cancer. Treatment normally starts immediately, is often given many miles from home and can last for up to three years. Although survival rates are over 80%, cancer remains the single largest cause of death from disease in children and young people in the UK.
About CLIC Sargent
When cancer strikes young lives CLIC Sargent helps families limit the damage cancer causes beyond their health. CLIC Sargent is the UK’s leading charity for young cancer patients and their families. We provide specialist support, to help and guide each young cancer patient and their family. We will fight tirelessly for them, individually, locally and nationally.
Note to sub editors
Please note that the name ‘CLIC Sargent’ should not be abbreviated to CLIC, and that the word ‘CLIC’ should always appear in capitals, as above.