2019

Welcome to The Good, The Bad and The Ugly, our impact and accountability report 2019.

A lot of impact reports are an opportunity for an organisation to boast about all the good things they’ve done. Ours has a bit of that, but we don’t think you care first and foremost what we have to say.

You support CLIC Sargent because you want to help children, young people and their families get through the devastating effects of cancer. That’s what matters most to us, too. So in this year’s impact and accountability report, we’ve given young cancer patients and their parents a voice to share the difference you’ve made to their lives, directly from them.👇

Dawid, aged 13

Diagnosed with a brain tumour aged seven

“Without CLIC Sargent, I would have felt really isolated.”

“After my brain tumour diagnosis, everything changed. I had to start all over again, re-learning how to walk, talk and interact with people. I used to be very popular at school, but I think my friends found it hard when I changed and didn’t always understand my behaviour. Coming to CLIC Sargent’s Children’s Advisory Group, I met other children like me, going through similar problems. And because we didn’t look at our disabilities we made good friends. Thanks to CLIC Sargent, I don’t feel isolated anymore.”

Dawid, aged 13

Diagnosed with a brain tumour aged seven

“Without CLIC Sargent, I would have felt really isolated.”

“After my brain tumour diagnosis, everything changed. I had to start all over again, re-learning how to walk, talk and interact with people. I used to be very popular at school, but I think my friends found it hard when I changed and didn’t always understand my behaviour. Coming to CLIC Sargent’s Children’s Advisory Group, I met other children like me, going through similar problems. And because we didn’t look at our disabilities we made good friends. Thanks to CLIC Sargent, I don’t feel isolated anymore.”

Hiral, aged 22

Diagnosed with leukaemia aged 20

“Without CLIC Sargent, I would have crumbled.”

“When I met my CLIC Sargent Social Worker, Sarah, shortly after my diagnosis, it was a relief to meet someone who didn’t give me medication or more bad news. With cancer, it’s not just the treatment you go through, it’s all the side effects. I got an infection in my spleen and couldn’t walk, so had to use crutches. I was 21, I should have been at uni, fit and healthy, but instead I was stuck in this little hospital room. Sometimes I found myself thinking, ‘Do I want to carry on?’ Sarah and the rest of the CLIC Sargent team were such a help. They gained my trust and I felt confident opening up and confiding in them. Without CLIC Sargent, I would have been really stressed out. They’ve been my foundation. They’ve given me something I can build on after my cancer.”

Hiral, aged 22

Diagnosed with leukaemia aged 20

“Without CLIC Sargent, I would have crumbled.”

“When I met my CLIC Sargent Social Worker, Sarah, shortly after my diagnosis, it was a relief to meet someone who didn’t give me medication or more bad news. With cancer, it’s not just the treatment you go through, it’s all the side effects. I got an infection in my spleen and couldn’t walk, so had to use crutches. I was 21, I should have been at uni, fit and healthy, but instead I was stuck in this little hospital room. Sometimes I found myself thinking, ‘Do I want to carry on?’ Sarah and the rest of the CLIC Sargent team were such a help. They gained my trust and I felt confident opening up and confiding in them. Without CLIC Sargent, I would have been really stressed out. They’ve been my foundation. They’ve given me something I can build on after my cancer.”

Abigail, aged 8

Diagnosed with acute lymphoblastic leukaemia aged three

“Without CLIC Sargent, I wouldn’t have got the mental health support I needed in time.”

“Abbey was just three years old when she was diagnosed with acute lymphoblastic leukaemia. When the doctor said cancer it was a hell of a shock. From that moment on life was a whirlwind.

Thankfully, we had our CLIC Sargent Social Worker, Sam. Our heads were totally shot, we were like rabbits in headlights at that stage, but he sorted out so much. Before her cancer, Abbey had never had her hair cut and we were worried about how she’d cope with losing her hair. Sam bought a Barbie doll for her that had wigs and headscarves. So, when Abbey’s hair did start to fall out, she was able to deal with it.

Cancer affects the whole family and at one point everything got on top of me. I suffered a lot with anxiety and depression and I struggled to get help. I felt like there was nowhere to turn. The GP suggested getting in touch with CLIC Sargent because they’d supported us before. The next thing, Sam was on the phone to the hospital, advocating for me so I was seen as a priority to get therapy. Without CLIC Sargent, I wouldn’t have got the mental health support I needed in time.”

Abigail, aged 8

Diagnosed with acute lymphoblastic leukaemia aged three

“Without CLIC Sargent, I wouldn’t have got the mental health support I needed in time.”

“Abbey was just three years old when she was diagnosed with acute lymphoblastic leukaemia. When the doctor said cancer it was a hell of a shock. From that moment on life was a whirlwind.

Thankfully, we had our CLIC Sargent Social Worker, Sam. Our heads were totally shot, we were like rabbits in headlights at that stage, but he sorted out so much. Before her cancer, Abbey had never had her hair cut and we were worried about how she’d cope with losing her hair. Sam bought a Barbie doll for her that had wigs and headscarves. So, when Abbey’s hair did start to fall out, she was able to deal with it.

Cancer affects the whole family and at one point everything got on top of me. I suffered a lot with anxiety and depression and I struggled to get help. I felt like there was nowhere to turn. The GP suggested getting in touch with CLIC Sargent because they’d supported us before. The next thing, Sam was on the phone to the hospital, advocating for me so I was seen as a priority to get therapy. Without CLIC Sargent, I wouldn’t have got the mental health support I needed in time.”

Hayley, aged 16

Diagnosed with acute myeloid leukaemia at 14 months old

“Without CLIC Sargent, it would have been really hard for my mum and dad to look after me in hospital.”

“While I was in hospital, CLIC Sargent put my mum up in a CLIC Sargent Home from Home really nearby, which made it so much easier for my parents to come visit me and support me.

As I’ve grown older, I’ve learned more about what I had and how it could have potentially affected me. I still have some physical reminders of that period in my life but I have always been determined not to let it define me.

Hayley’s mum Renee says: “When your child has cancer, you don’t really have a choice but to cope. If Hayley was going to get through this, we had to be positive and proactive and try to understand the process as much as possible. Thankfully, we had CLIC Sargent’s resources – they were from a trusted source, which was really important. It saved us from Googling and worrying ourselves with the amount of misinformation out there. We never saw ourselves as victims and we felt more powerful due to CLIC Sargent’s support.”

Hayley, aged 16

Diagnosed with acute myeloid leukaemia at 14 months old

“Without CLIC Sargent, it would have been really hard for my mum and dad to look after me in hospital.”

“While I was in hospital, CLIC Sargent put my mum up in a CLIC Sargent Home from Home really nearby, which made it so much easier for my parents to come visit me and support me.

As I’ve grown older, I’ve learned more about what I had and how it could have potentially affected me. I still have some physical reminders of that period in my life but I have always been determined not to let it define me.

Hayley’s mum Renee says: “When your child has cancer, you don’t really have a choice but to cope. If Hayley was going to get through this, we had to be positive and proactive and try to understand the process as much as possible. Thankfully, we had CLIC Sargent’s resources – they were from a trusted source, which was really important. It saved us from Googling and worrying ourselves with the amount of misinformation out there. We never saw ourselves as victims and we felt more powerful due to CLIC Sargent’s support.”

Finn, aged 7

Diagnosed with leukaemia aged three

“Without CLIC Sargent, I don’t think we would have survived.”

“Cancer devastated our finances,” says Mum, Debbie. “Every single bit of our savings was wiped out and we were selling belongings to get more money.

Before all of this we thought we were comfortable, but your finances can be devastated so quickly. My CLIC Sargent Social Worker Claire couldn’t have been more helpful. We were able to get a room at CLIC Haven; we could get out of the hospital, have a shower and be out of that clinical atmosphere. Our actual home was a two-hour drive away, so CLIC Haven gave us somewhere to be together as a family.

Claire also helped us get a grant which was a huge boost for us. She helped us with our benefit forms, something we wouldn’t have been able to navigate on our own because they are so complex. It’s impossible to deal with applying for benefits and every-day chores when your child is having treatment for cancer, so Claire’s help was a huge weight off our shoulders.”

Finn, aged 7

Diagnosed with leukaemia aged three

“Without CLIC Sargent, I don’t think we would have survived.”

“Cancer devastated our finances,” says Mum, Debbie. “Every single bit of our savings was wiped out and we were selling belongings to get more money.

Before all of this we thought we were comfortable, but your finances can be devastated so quickly. My CLIC Sargent Social Worker Claire couldn’t have been more helpful. We were able to get a room at CLIC Haven; we could get out of the hospital, have a shower and be out of that clinical atmosphere. Our actual home was a two-hour drive away, so CLIC Haven gave us somewhere to be together as a family.

Claire also helped us get a grant which was a huge boost for us. She helped us with our benefit forms, something we wouldn’t have been able to navigate on our own because they are so complex. It’s impossible to deal with applying for benefits and every-day chores when your child is having treatment for cancer, so Claire’s help was a huge weight off our shoulders.”

We’re proud of what was achieved for young lives against cancer last year.

But we want you, our supporters, to feel proud too, because we know we can’t do anything without your support.

So, as well as all the good things, we’re also going to share The Bad, which are things we didn’t get right last year. We do this because you keep the charity running, so we know we’re accountable to you. And we also want to highlight The Ugly, things that make life harder for children and young people with cancer. That makes us angry and we’re fighting hard to solve them, but we need others to do their bit too.

The Good

Getting young lives back on track

Thanks to our partner Societe Generale, we gave out 43 ‘Thrive not just survive’ grants, totalling £72,000, helping young cancer patients get their ambitions back on track.

Knowledge is power

We launched an outreach nurse educator service which sees nurses deliver best practice training in childhood cancer to healthcare professionals in local services across the UK. 95% of participants said it would help improve the care they could provide locally, helping young cancer patients get the best care close to home.

Faster help with cancer costs

We integrated our new social care database with our grants system, meaning we can pay grants directly into bank accounts and help with cancer costs more quickly (previously we sent cheques).

Children’s Funeral Fund is here

After three years’ tireless campaigning, Government has launched a Children’s Funeral Fund. From now on, when a child dies, parents will no longer be forced into debt to pay for the funeral.

Read the full story

There’s no place like home

We relocated two of our Homes from Home, in Edinburgh and Southampton, to provide a better service for families staying close to their child in hospital.

From the bottom of our art

This World Cancer Day, thousands of you proudly wore our Bands Against Cancer, 460 volunteers banded together to support our charity partner Morrisons with 250 bucket collections at local stores, and we held three art shows of young cancer patients ‘change’-themed art. Together we raised £690,000!

There when it matters most

We issued 1,287 financial hardship grants for families who face even greater financial difficulties than others when cancer strikes. The grant was funded by a generous £350,000 donation from Children with Cancer UK.

Digital service to reach more

We launched our website Live Chat to help reach more children and young people when they need us. In the first six months, we’ve had 241 conversations, covering topics from our care to queries around money and education.

Reaching out to young people

Bupa UK Foundation awarded us a grant of £41,757 towards the development of our Online Community for young people with cancer, which we moved to Facebook to make it even easier for people to connect.

Access all areas

The Laura Crane Youth Cancer Trust gave their final grant of a three year partnership totalling £61,202, funding a CLIC Sargent Young People’s Social Worker who has supported 139 young people across Lancashire.

Staying close to hospital

The McClay Foundation provided ongoing support to our two Homes from Home in Northern Ireland with a gift of £25,000, which meant we could welcome 175 families.

Signet Jewelers

Our long-standing partnership with Signet Jewelers continued to sparkle, raising £181,678 in 17/18 taking their partnership total to £879,000.

BAM Construct

Our partnership with BAM Construct UK was extended for another year! Employees got involved in a range of events, such as hosting a Christmas party at one of our Homes from Home in Bristol.

Christmas spirit

Staff at Invesco named us ‘Charity of the year’ and fundraising kicked off with a Christmas auction raising £18,614 and staff donating an hour of their salary, which raised more than £17,000.

Raise a glass

Our 17-year-long partnership with J D Wetherspoon reached an incredible £17 million last year! As well as ongoing fundraising, last Christmas staff in Bristol volunteered by decorating one of Homes from Home for families staying during the Christmas period.

Morrisons makes it

Last year Morrisons colleagues voted overwhelmingly to extend our partnership by a year, which will fund a brand new Home from Home. They also celebrated raising over £7.5 million in just two years. Morrisons suppliers contributed to the record-breaking total through ‘Every Pack Gives Back’ and the Morrisons Little Kitchen Range, which was launched after it was tested by families we supported.

Thank you

To our legendary supporters, partners, staff,  volunteers and the incredible young cancer patients and their families, we help –  CLIC Sargent is only amazing because of you.  With special mention to…

The Bad

You complained, we acted

Last year we received 99 complaints. Two-thirds were about door-to-door fundraising (using agencies to fundraise for us by visiting people’s homes to share our vital work and ask them to help). Last year, we raised £600,000 this way, a big part of our income. And 11,347 people started a direct debit after speaking to a door-to-door fundraiser, so the ratio of complaints is small. But fundraising with integrity is important to us, so we put a number of procedures in place to make sure we get it right.

We also had eight complaints about how clearly we talk about what we offer and how we help children and young people with cancer, and their families. We don’t want families to be uncertain about our service, so we’ve used these complaints to improve the way we communicate our work.

Giving young lives more control

Young cancer patients and their families shape CLIC Sargent in a variety of ways, from participating in advisory panels and reference groups to helping us recruit and induct our staff. But too often we develop ideas for our services, campaigns and projects and then ask for approval, which puts pressure on them to tell us it’s great. We need to work differently across the board to ensure we genuinely co-design our work alongside children, young people and parents, right from the outset.

Are we supporting fewer people?

Last year we supported 2,818 newly diagnosed young cancer patients, which is a lower figure than previous years. We’ve looked into this and there may have been fewer children diagnosed with cancer due to a drop in birth rates. The decrease (mainly in the 0 –15 age group), was also partly down to changes we made to comply with new data protection laws which launched in May 2018, including a new referral form for clinicians. Implementing a new process initially slowed down the number of referrals. But we simplified the process and were on hand to support clinicians with the form. The new process is now running smoothly.

The video

We got members of our executive team in a room to talk about the things they wished we had done better last year. It’s the sort of conversation that organisations keep behind closed doors, but we filmed it because we’re accountable to you, so you have a right to know. Happy viewing!

The Ugly

The travel costs scandal

Last year we campaigned for a Young Cancer Patient Travel Fund to help ease the financial burden families face when travelling for treatment. 30,000 people signed a petition to set up the fund and we got cross-party support from MPs. But nothing has actually happened in terms of the fund itself. That’s unacceptable.

Supporting the missing third

Last year we told you we supported 69% of children and young people diagnosed with cancer, and that we were working on reaching the ’missing third’. As part of this work, we’ve been investigating and analysing data, which identified some complex issues.

Read the detail

The pence-in-the-pound debate

We know many people make decide to support a charity based on how much money goes on their frontline service. We think that’s a flawed formula and, for us, means it is costing young cancer patients getting the support they need. Why is it flawed?

Read our CEO Kate Lee’s challenge on the ACEVO website and find out!

Here’s the difference we made

Our reach

6,733

We reached 6,773 children and young people with cancer (that’s 66% of everyone under 25 diagnosed with cancer).

23,500

We know the lives of family members are also often wrecked because of a young person’s cancer diagnosis, so the total number of people we reached last year was around 23,500.

The impact we had

As a direct result of CLIC Sargent’s work:

72%

72% of young people said CLIC Sargent’s support helped them get their life back on track after cancer

67%

67% of parents said CLIC Sargent’s support helped them adjust to life after their child’s cancer treatment

We spent £14.6m to make that impact

 

Things to know

Percentages are respondents who agreed or strongly agreed with the statement.

Results are based on the 126 young people or parents who responded to the survey (of a population of 4,962 who came to the end of their service with us between 1 October 2017 and 31 March 2019).

Here’s how we did it.

1,220

families welcomed in our Homes from Home

5,802

grants given to help families, totalling over £1.2 million

2

new grants launched for young cancer patients

373

individual school healthcare plans created to ease the transition back into education

1,109

opportunities for young people and families to get involved in shaping CLIC Sargent’s work

1,336

visits to schools, colleges and universities to deliver care to students, stopping them missing classes

34,000

campaign actions taken by our supporters

We have great ambitions for young lives against cancer – to limit the isolation, debt and fear of the future cancer can cause. But we can’t do any of it without you.

Join our fightDonate

Read our full report

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