What we know
Young people and their families have told us that getting timely access to benefits should be a priority, and that the process for applying needs to be straightforward.
Benefits such as Disability Living Allowance (DLA) and Personal Independence Payments (PIP) are often a lifeline for families, providing some sort of income, however small, to help them cope with increasing costs and falling incomes.
However, often these benefits aren’t able to cope with fluctuating or complicated circumstances.
Young people have told us that the assessment process for PIP can be particularly difficult, with assessors often lacking the understanding and knowledge required to assess the impact of their condition.
What we’re calling for
We believe the government should improve support for young cancer patients and their parents by making changes to the way Personal Independence Payment (PIP) and Disability Living Allowance (DLA) is currently accessed.
Cancer costs from day one
From the day a child or young person gets the news they have cancer, the financial impact can be felt immediately. The first three months of treatment for young cancer patients are a difficult and expensive time as treatment starts immediately and is often a long way from home.
However, young cancer patients have to wait three months before they can apply to the Government for benefits designed to help with the cost of an illness or disability. We don’t think this is right. That’s why we’re asking the Government to review this.
We've launched a campaign to make sure children and young people with cancer and their families receive the support they are entitled to when they most desperately need it. Support the campaign by using our simple tool to email your MP and ask them to urge the Government for change.
For more information, read our briefing.
Read more about young people’s experiences of accessing benefits in our Cancer costs report.