Posted on Friday 20 September 2019
CLIC Sargent responds to news that children are being denied new cancer drugs
A study from the Institute of Cancer Research and The Royal Marsden NHS Foundation Trust has shown the power of genetic testing to pick out potential new treatments for children with cancer to extend and improve their lives. However, only 7% of children could access appropriate drugs, partly due to regulatory and funding barriers, and lack of access to clinical trials.
Jeanette Hawkins: Chief Nurse at CLIC Sargent, said: “We welcome the call to improve the speed that potential new treatments, including precision medicine, reach the patient. It is disappointing to hear that only a small number are able to access this at present and while we recognise that a safe framework for introducing new drugs must be in place, it should not be held up by unnecessary hurdles. Making sure that all children and young people with cancer have access to relevant and appropriate treatments is vital for improving survival rates and reducing the long-term consequences of currently available treatments. Exploring kinder, more targeted treatments for children with cancer must be a priority given that as many as 60% of childhood cancer survivors are living with long term consequences of treatment and as many as 25% have more severe long term effects. We support the call for new treatments to be introduced as quickly as possible within robust clinical trials.
“We believe that young cancer patients must also be supported with the long-term impact of cancer treatments that currently exist.”
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Notes to editors
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About cancer in children and young people
Today, 12 more children and young people in the UK will hear the devastating news that they have cancer. Treatment normally starts immediately, is often given many miles from home and can last for up to three years. Although survival rates are over 80%, cancer remains the single largest cause of death from disease in children and young people in the UK.
About CLIC Sargent
When cancer strikes young lives CLIC Sargent helps families limit the damage cancer causes beyond their health. CLIC Sargent is the UK’s leading charity for young cancer patients and their families. We provide specialist support, to help and guide each young cancer patient and their family. We will fight tirelessly for them, individually, locally and nationally. For more information, visit www.clicsargent.org.uk
Note to sub editors
Please note that the name ‘CLIC Sargent’ should not be abbreviated to CLIC, and that the word ‘CLIC’ should always appear in capitals, as above.
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