Online support groups

Although you'll receive a lot of professional support when your child is diagnosed, some parents find that talking to people with similar experiences is an invaluable source of information and support. Online support groups and forums can be a good way to do this.

At their best they can provide moral support and comfort, making you feel less alone or isolated. They work well when:

  • They provide moral support and understanding in a safe, responsible environment
  • They reduce anxiety about the diagnosis or symptoms.

Choosing the right group

However, some parents have told us that online support groups or forums aren't always positive places. They don't work so well when:

  • Individuals within the group encourage others to use alternative therapies rather than prescribed medication
  • Moderators are not monitoring the group suitably
  • Posts are highly negative without being balanced by positive feedback
  • Posts claiming to be factual prove to have no scientific basis
  • You feel pressure to donate money or buy a product.

If you don't feel comfortable with a group, forum or blog you can always leave. If in doubt, talk to your CLIC Sargent Social Worker.

"If you join online groups, I'd say be selective and make sure it meets your needs."

Our Facebook group for parents

Join our private Facebook group to meet other parents and carers with similar experiences, share your views and have your voice heard. Find us on Facebook or email for more information.

Mind the chaps! A group just for dads

We've also set up a closed Facebook group especially for dads and male carers to chat, share experiences and ideas, and support each other through difficult times. Request to join now.

Where next?

Updated March 2018, next review due 2019.