CLIC Sargent announced today that its What now? booklet, a resource for parents of children who have been diagnosed with cancer, won the British Medical Association’s Patient Information Award for Decision Making.
The booklet, distributed in hospitals across the UK, aims to help parents and carers of newly diagnosed children under 16 years of age understand how cancer may affect their family, and what support is available to them. This includes advice on the people helping your child, visiting hospital, how to find out more about your child’s diagnosis, talking to your child and telling other people, finding out what financial support is available, work and employment rights and looking to the future after treatment is completed.
The structure and content of What now? was planned after in-depth consultations with parents and carers whose child had been diagnosed with childhood cancer. Participants were asked what they would have liked to know as soon as their child was diagnosed and what information and support was needed throughout treatment and beyond. Parents and carers informed not only the content, but the form the booklet should take and how it should look. A range of health and social care professionals and experts were also involved in developing the resource, including CLIC Sargent social workers, and clinicians, nurses, HR specialists and benefits advice specialists.
Its reviewer at the British Medical Association said: “This resource is a great example of how to produce patient information. It is clear that much planning has gone into the development of the booklet. Users and professionals have been involved in the development which has resulted in a well–designed information booklet for parents and carers of children with cancer.”
Liz North, Director of Communications and Campaigning at CLIC Sargent, said: “We are delighted that What now? has received this prestigious BMA Patient Information Award and particularly that judges recognised the value of CLIC Sargent’s collaborative approach – working with parents and carers as well as our care professionals and clinicians. We’d like to thank the parents involved for helping create such a vital resource for families affected by childhood cancer.
“The need for information at the point of diagnosis has long been recognised and was highlighted most recently in our More than my illness report. When a parent or carer finds out that their child has cancer they can be left feeling overwhelmed, not knowing where to find the right information. What now? is a key new addition to our information support package and we hope that it proves to be a useful tool for the whole family during a very difficult time.”