Children and young people’s cancer charity CLIC Sargent has welcomed the latest National Cancer Patient Experience Survey (CPES) but is calling for similar data to be recorded for cancer patients under 16.
CPES measures cancer patients' experiences and is used to effectively highlight areas of improvement in patient care.
However, the survey only records data from those aged over 16. CLIC Sargent believes capturing the experiences of patients under 16 will help improve care both now and in the future.
CLIC Sargent Chief Executive Kate Lee said: “Recording and evaluating the experiences of cancer patients is vital to improving health care and the National Cancer Patient Experience Survey gives a real insight into the experiences of cancer patients, which we welcome.
"However, there is currently no equivalent for cancer patients under 16. Each year around 1,600 under 14s find out they have cancer but they are not given the same chance as adults to share their experiences in a way that will inform and improve future care.
“This is a missed opportunity as the more we know about how all cancer patients’ experiences, the more improvements that can be made. As the UK’s leading cancer charity for children and young people we have the expertise and support available to assist NHS England in developing methodology to record a truer reflection of young cancer patients’ experiences.”
To find out more about the CPES 2015 survey visit: www.ncpes.co.uk
For more information, an interview or images please contact Helen Thomas on 020 8752 2855 or email firstname.lastname@example.org. Outside office hours please call 08448 481189.
About cancer in children and young people
Every day, 10 children and young people in the UK hear the shocking news they have cancer. Treatment normally starts immediately, is often given many miles from home and can last for up to three years. Although survival rates are over 80%, cancer remains the single largest cause of death from disease in children and young people in the UK.
About CLIC Sargent
CLIC Sargent is the UK’s leading cancer charity for children and young people, and their families. We provide clinical, practical and emotional support to help them cope with cancer and get the most out of life. For more information visit www.clicsargent.org.uk
Note to sub editors
Please note that the name ‘CLIC Sargent’ should not be abbreviated to CLIC, and that the word ‘CLIC’ should always appear in capitals, as above.