Children and young people’s cancer charity, CLIC Sargent, is calling on NHS England to commission a full national cancer patient experience survey for under-16s, after the Care Quality Commission (CQC) published its first survey of the experience children have in hospitals in the UK.
CLIC Sargent Chief Executive, Lorraine Clifton, said: “We welcome the Care Quality Commission Survey of children’s experience in hospitals.
"It proves that you can survey under-16s and get valuable insights into what the NHS is doing well, and how it could make the experience of hospital better for children and their families.
“So we’re calling on NHS England to take the next step and include under-16s in their national cancer patient experience survey.
"Up until now under-16s have been excluded from that survey, and that means their voice is not being heard when the NHS looks at how to improve cancer care.
"We’re calling on NHS England to learn from the CQC’s great work in this survey and ensure that children with cancer are included in the next cancer patient experience survey.”
The national cancer patient experience survey started in 2010 and provides insights into the care experienced by cancer patients across England who were treated as day cases or inpatients.
It is now conducted annually, and all cancer patients over 16 years-old who have been treated for cancer in the previous year are asked to take part.
CLIC Sargent is calling for NHS England to extend the survey to include children under 16.
CLIC Sargent is the UK’s leading cancer charity for children and young people, and their families. We provide clinical, practical and emotional support to help them cope with cancer and its impact on their lives. For more information visit www.clicsargent.org.uk
About cancer in children and young people
Every day, 10 children and young people in the UK hear the shocking news they have cancer. Treatment normally starts immediately, is often given many miles from home and can last for up to three years. Although survival rates are over 80%, cancer remains the single largest cause of death from disease in children and young people in the UK.
Note to sub editors
Please note that the name ‘CLIC Sargent’ should not be abbreviated to CLIC, and that the word ‘CLIC’ should always appear in capitals, as above.