Can someone please help me in understanding if the pain my little girl is going through is similar to the pain they have seen in their own child's treatment. My four year old daughter was diagnosed with ALL four weeks ago and since this time my daughters treatment has been intensive. We have just recently got home from the hospital (after being released for a day only for an infection to spike her temperature, so we were back in for another week). Home now, but in the last 10 days she has had constant back and stomach pains, at points this is causing her to cry out in pain. We have her on laxatives to keep her bowels moving, so we know its not simply just down to this and we know the chemo gives bone pain, but the codeine prescribed is not even taking the edge off the pain, we have been told we can't give her paracetamol as this can mask a temperature and that ibuprofen can make the stomach pains worse...... my question is simply this, should we just expect this pain as ongoing for our little girl as part of her treatment. Is this normal, we have spoken to the consultants and they have given some mild IBS Med to see if this will help, but no success so far....has anyone else gone through this?
16th July 2013#1