You can download and print PDFs from this page to help keep track of your child's treatment. These records include contact information for professionals involved in your child’s care, as well as covering different aspects of treatment such as blood results and monitoring any side effects.
- Contact information of professionals: Keep a record of contact information of professionals involved in your child’s care
- Appointment schedule: To keep track of upcoming appointments and meetings
- Record of blood results: A full blood count (FBC) measures the number of different types of blood cells in the blood. This is one of the main ways to monitor the side effects of treatment
- Record of height and weight: To monitor any changes
- Side effect scoring chart: Guidance on how to score in the Side effect patient’s diary
- Side effect patient’s diary: To be used to record the degree of side effects, according to the descriptions on the Side effects scoring chart.
- Essential information and central line maintenance: To be completed at each dressing change or port needle change.
- Naso-gastric tube gastrostomy change record: To be completed at each change
- Insuflon change record: An Insuflon is a device that goes into the soft tissue beneath the skin and is used to give some treatments.
- Notes: Lined pages for note-taking
- Illness and infection: Informing the hospital and when to get in contact
Updated March 2015, next review due 2017.