Where to get help

A young person or child's consultant is responsible for their medical treatment, referral to a proton therapy centre abroad and any follow up care they may need. They will be able to answer your queries about any aspect of the treatment.

If you have any questions about your travel and accommodation arrangements, contact your designated liaison person at your local NHS trust.

You can also contact the proton beam therapy centres directly for advice about accommodation:

University of Florida Proton Therapy Institute

Website: www.floridaproton.org
Email: NHSpatients@floridaproton.org

ProCure Proton Therapy Center, Oklahoma City

Website: www.procure.com/ourlocations/oklahoma.aspx
Email: intakenurse@okc.procure.com

Who else can help?

Parents and young people tell us they have also found the organisations below a useful source of help and support during or following a trip abroad for proton beam therapy.

Facebook group

The Facebook group ‘Proton Therapy Support Group for All Proton Families’ is for all families who travel abroad for proton beam therapy. The group arranges family days out in the UK to continue support after treatment.

Children’s Cancer and Leukaemia Group (CCLG)

Latest information about children and young people’s cancers.
www.cclg.org.uk

Kids Cancer Charity

Support for families affected by childhood cancer, including play therapy, support groups and family breaks. 
www.christianlewistrust.org

Adam Rogers Trust

Wrap-around support and care for families of children and young people with cancer. Based at Addenbrookes Hospital in Cambridge.
www.adamrogerstrust.org

Make a Wish Foundation UK

Grants wishes to children and young people aged three to 17who have life-threatening conditions.
www.make-a-wish.org.uk

Camille’s Appeal

Support for children under five who are having treatment for, or recovering from, a brain tumour.
www.camillesappeal.co.uk

Indee Rose Trust

Provides ‘Treasure Boxes’ for children who are in hospital receiving treatment for a brain or spinal tumour. Also provides free UK holiday accommodation for families.
www.indeerosetrust.org

Samuel's Children’s Charity

Help with treats and days out in the UK for families affected by childhood cancer.
www.samuelschildrenscharity.co.uk

Caudwell Children

Works to improve the health of children and ensure every family has access to the equipment, services and treatments they require.
www.caudwellchildren.com

Kidsncancer

Help families fund treatment abroad for their cancers and tumours.
www.kidsncancer.co.uk

July 2013, next planned review 2014.

Share