Following our More Than My Illness report in 2010, CLIC Sargent teamed up with professionals leading the development of services at one of the UK’s Principal Treatment Centres for teenagers and young adults, to explore whether more could be done to develop the service locally.
CLIC Sargent and the Royal Marsden NHS Foundation Trust applied for an Innovation grant from the Department of Health Third Sector Investment Programme (TSIP) to take forward and evaluate a project aimed at improving outcomes for young people through local services. The project received an award of £90,000 over three years. Underspend at the end of the project was returned to TSIP. London South Bank University was commission by NHS London (through the former National Cancer Action Team) to independently evaluate the project.
The project follows how this service developed between 2012 and 2015, identifying successes and challenges along the way. Work-streams were developed to support desired outcomes for young people including:
- Improvement in young people’s cancer experience
- Improved emotional wellbeing
- Young people better able to participate in education, employment or training
- Young people better able to spend more time safely at home during treatment.
Work-streams to achieve these goals focused on:
- The key worker role for young people
- Holistic needs assessments and transition planning
- Referral pathways
- Patient held record development
- Establishing community links.
The service was still developing during the project and it was not possible to interview young people as part of the evaluation. Instead health professionals leading on the service developments and service delivery were interviewed. They provided a past, present and future analysis on the development of the Teenage and Young Adult service.