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Take part in research

CLIC Sargent undertakes research projects to help us find out what issues concern children and young people with cancer and their families, and how they feel about the services available to them. Take part in our research to influence and inform decision-makers and policy makers, as well as to improve our own services.

Take part in research

CLIC Sargent research

Taking part in CLIC Sargent research gives you the opportunity to share your views and experiences, which can help us to improve the care and support services available for children and young people with cancer and their families.

CLIC Sargent research opportunities

Experience of CLIC Sargent

Research lead: CLIC Sargent
Deadline for taking part: Ongoing
Those eligible to take part: Young people (aged 13-24 during cancer treatment) and parents/carers of a child dignosed with cancer who have experienced CLIC sargent services. Please note this survey has not been designed for bereaved parents/carers and we are currently in the process of creating a survey which is more suitable. 
Research type: Online survey: Please use the following links for the young people's survey or parent/carer survey.

Other research opportunities

Test a website for young people with cancer and distress

Research lead: UCL and CLIC Sargent
Deadline for taking part: Ongoing
Those eligible to take part: Young people aged 13-24 years old who have/have had cancer. You do not need to have distress/low mood to take part.
Research type: We are looking for young people who meet the above criteria to take part in a service improvement project where they are asked to test out a website designed to reduce low mood or distress in young people with cancer. We want to know what you think about the website. You will also be asked to complete short questionnaires about your mood before and after using the website. Your feedback will help us improve the website for others. If you are interested in taking part, please contact: gosh-candi@ucl.ac.uk.

Experience of teenage and young adult cancer

Research lead: James Lind Alliance, supported by CLIC Sargent, Teenage Cancer Trust, and Children with Cancer UK  
Deadline for taking part: 4 January 2017 
Those eligible to take part: If you have experience of teenage or young adult cancer then we want to hear from you. The survey is open to those who have been diagnosed or treated for cancer between the ages of 13 and 24 years old (it does not matter what age you are now), relatives/friends/partners/carers of someone who has been diagnosed or treated for cancer between the ages of 13 and 24 years old, and professionals working with teenagers/young adults with cancer.
Research type: Is there anything that you wanted to know about cancer that you couldn’t find an answer to? Perhaps more research is needed in that area, or more information made available about it? The survey is designed to enable patients, their friends, family members and professionals who work with teenagers and young adults with cancer to have their say in guiding future research by identifying research questions that are important to them. The questions will be made available to research funders to ensure they are aware of what matters most to patients, their friends and families, and professionals. This survey is to ask you about what questions you think researchers should be working on. Fill in the survey or find out more information on the TYAC website.

If you have any questions on this research or need further information, please contact Helen Gravestock, CLIC Sargent Research and Policy Manager, on helen.gravestock@clicsargent.org.uk 

Understanding young people's experiences of the steroid dexamethasone

Research lead: University of Oxford   
Deadline for taking part: 31 January 2017 
Those eligible to take part: Young people aged 16-21 years old who have taken the steroid dexamethasone as part of their treatment for acute lymphoblastic leukaemia or lymphoblastic leukaemia within the last five years. Participants must no longer be recieving treatment (or are in remission) and must be living in the UK.
Research type: The researchers are looking for young people who meet the above criteria to talk to a researcher about their experience of dexamethasone. This research aims to develop our understanding of what it is like for young people taking dexamethasone with the hope of improving support for young people in the future. Participants will be entered into a draw for the chance to win an Amazon voucher.

If you are interested in taking part or would like more information, please contact Katherine Durka by emailing: katherine.durka@hmc.ox.ac.uk

Survivorship study: How young people cope with the emotional impact of cancer

Research lead: University of Chester
Deadline for taking part: December 2016
Those eligible to take part: Young people over 16 years old who have received a cancer diagnosis in the last 12 months.  
Research type: Participants are needed for new study which is exploring the emotional impact of cancer. The research team are interested in finding out how people cope during this time. As a thank you for completing the online survey you will be entered into a prize draw where you could win a £50 Amazon voucher or an iPad mini. Read the information sheet or contact the researchers at Survivorship@chester.ac.uk for more information.

Working with others

We also work on research projects to help improve services with our partners from other organisations, such as universities and other charities. If you are a researcher and are interested in working with CLIC Sargent on a research project please contact us at: campaigns@clicsargent.org.uk.

If you would like to know more about the type of research CLIC Sargent undertakes and how we use this to influence policy take a look at our previous policy reports.

Contact us

If you have any questions about our research, please email: campaigns@clicsargent.org.uk

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