Take part in research

CLIC Sargent undertakes research projects to help us find out what issues concern children and young people with cancer and their families, and how they feel about the services available to them. Take part in our research to influence and inform decision-makers and policy makers, as well as to improve our own services.

Take part in research

CLIC Sargent research

Taking part in CLIC Sargent research gives you the opportunity to share your views and experiences, which can help us to improve the care and support services available for children and young people with cancer and their families.

CLIC Sargent research opportunities

Experience of CLIC Sargent

Research lead: CLIC Sargent
Deadline for taking part: Ongoing
Those eligible to take part: Young people (aged 13-24 during cancer treatment) and parents/carers of a child dignosed with cancer who have experienced CLIC sargent services. Please note this survey has not been designed for bereaved parents/carers and we are currently in the process of creating a survey which is more suitable. 
Research type: Online survey: Please use the following links for the young people's survey or parent/carer survey.

Other research opportunities

Understanding young people's experiences of the steroid dexamethasone

Research lead: University of Oxford   
Deadline for taking part: 31 January 2017 
Those eligible to take part: Young people aged 16-21 years old who have taken the steroid dexamethasone as part of their treatment for acute lymphoblastic leukaemia or lymphoblastic leukaemia within the last five years. Participants must no longer be recieving treatment (or are in remission) and must be living in the UK.
Research type: The researchers are looking for young people who meet the above criteria to talk to a researcher about their experience of dexamethasone. This research aims to develop our understanding of what it is like for young people taking dexamethasone with the hope of improving support for young people in the future. Participants will be entered into a draw for the chance to win an Amazon voucher.

If you are interested in taking part or would like more information, please contact Katherine Durka by emailing: katherine.durka@hmc.ox.ac.uk

Help develop a self-help website for children and young people with cancer

Research lead: UCL/GOSH and CLIC Sargent
Deadline for taking part: Ongoing
Those eligible to take part: Young people aged 13-24 years old who have or have had cancer, and/or their parents. 
Research type: A team of researchers from UCL/GOSH want to find out how best to support young people with cancer when they are distressed. They are inviting young people and/or their parents to take part in an interview which will take 20-30 minutes. In this interview they will ask you about your experiences of having cancer and any associated emotional distress (eg feeling low or down). They will also show you a website they are developing to support young people with cancer who are distressed and ask for your feedback on its design and content. To take part or for more information email Hannah at: gosh-candi@ucl.ac.uk or read more about it in this research statement.

Survivorship study: How young people cope with the emotional impact of cancer

Research lead: University of Chester
Deadline for taking part: December 2016
Those eligible to take part: Young people over 16 years old who have received a cancer diagnosis in the last 12 months.  
Research type: Participants are needed for new study which is exploring the emotional impact of cancer. The research team are interested in finding out how people cope during this time. As a thank you for completing the online survey you will be entered into a prize draw where you could win a £50 Amazon voucher or an iPad mini. Read the information sheet or contact the researchers at Survivorship@chester.ac.uk for more information.

Working with others

We also work on research projects to help improve services with our partners from other organisations, such as universities and other charities. If you are a researcher and are interested in working with CLIC Sargent on a research project please contact us at: campaigns@clicsargent.org.uk.

If you would like to know more about the type of research CLIC Sargent undertakes and how we use this to influence policy take a look at our previous policy reports.

Contact us

If you have any questions about our research, please email: campaigns@clicsargent.org.uk