At their best they can provide moral support and comfort, making you feel less alone or isolated. They work well when:
- They provide moral support and understanding in a safe, responsible environment
- They reduce anxiety about the diagnosis or symptoms.
Choosing the right group
However, some parents have told us that online support groups or forums aren't always positive places. They don't work so well when:
- Individuals within the group encourage others to use alternative therapies rather than prescribed medication
- Moderators are not monitoring the group suitably
- Posts are highly negative without being balanced by positive feedback
- Posts claiming to be factual prove to have no scientific basis
- You feel pressure to donate money or buy a product.
If you don't feel comfortable with a group, forum or blog you can always leave. If in doubt, talk to your CLIC Sargent Social Worker.
"If you join online groups, I'd say be selective and make sure it meets your needs."
Our Facebook group for parents
Join our private Facebook group to meet other parents and carers with similar experiences, share your views and have your voice heard. Find us on Facebook or email email@example.com for more information.
Mind the chaps! A group just for dads
We've also set up a closed Facebook group especially for dads and male carers to chat, share experiences and ideas, and support each other through difficult times. Request to join now.
- You might not be ready to connect with other parents yet but you can read their stories and experiences
- It's important to build a support network. Make sure you reach out to your friends for help with these tips
Updated March 2018, next review due 2019.