More Than My Illness

More Than My Illness examines the non clinical needs of children and young people with cancer.

Meeting the needs of children with cancer

In 2008 CLIC Sargent asked children and young people with cancer, and their families, what they needed outside of hospital. We looked at previous consultations and worked closely with a range of professionals including nurses, doctors, social workers and teachers.

As a result of this work, CLIC Sargent published More Than My Illness: Delivering quality care for children with cancer, which made recommendations on how best to provide care and support to children and young people with cancer (aged 0-18), and their families.

You can download the final report, executive summary and summary of consultation (right).

Meeting the needs of young adults with cancer

More Than My Illness: Delivering quality care for young people with cancer is the second of two CLIC Sargent reports which examine the non-clinical needs of children and young people with cancer. This report focuses on young people aged 16-24 and their families, while the first in the series focused on the needs of children aged 0-18.

More Than My Illness recommends that all young people diagnosed with cancer be assigned a key worker to coordinate clinical, emotional and social care and facilitate practical support such as educational and work advice.

CLIC Sargent has secured funding from the Department of Health and the National Cancer Action Team to pilot and evaluate a key worker led model with the Royal Marsden Hospital. The charity will also be working with other organisations involved in the delivery of care and support for children and young people with cancer, to consider how the report’s recommendations can be implemented in their work.

You can download the final report on the right hand side of this page.

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