Inquiry into patient experience

The All Party Parliamentary Group (APPG) on Children, Teenagers and Young Adults with Cancer (CTYAC) is launching an inquiry into patient experience for children and young people with cancer across the UK. We want to hear from young people, parents and health professionals.

Why is the APPG looking at patient experience?

Patient experience has been identified by NHS England and in cancer strategies across the UK as being vital to clinical outcomes. 

Improvements have been made in cancer services across the UK, but progress still needs to be made in key areas of experience for children, teenagers and young adults, including earlier diagnosis, access to age-appropriate services and post-treatment support.

The APPG hopes to better understand the experiences of children and young people with cancer and identify whether their needs are being met by cancer services across the UK. 

Read the full terms of reference of the inquiry.

What do we want to find out?

The group will gather evidence and make recommendations on the following three themes: 

  1. Children and young people’s experiences of diagnosis
  2. Post-treatment support for children and young people
  3. How children and young people want their voices to be heard in the system.

Call for evidence

The APPG will be gathering focused feedback from healthcare professionals, children and young people with cancer and their families through an online survey.

The group will also be holding two scrutiny sessions in Parliament with key civil servants, Ministers and charity sector representatives. Young people, parents and healthcare professionals will be able to submit questions to be asked at the sessions.

How can you get involved?

  • Take part in our online survey. If you’re a healthcare professional, young person who has been diagnosed with cancer or a parent of a child who has been diagnosed with cancer, the APPG would like to hear from you. The survey takes just five minutes to complete. You’ll also have the chance to submit a question that you would like to ask the Government. Take part now.
  • Share your views with APPG members during a Facebook Live Q&A session in Parliament on Tuesday 6 March.

What will happen next?

The APPG will publish the findings of this Inquiry and the key recommendations for change in the Summer of 2018.