11-year-old Ethan, from Southampton, was diagnosed with osteosarcoma in his left femur.
His family have been supported by Tricia, their CLIC Sargent Social Worker, who has provided them with emotional advice, information on treatment and she also helped them apply for Disability Living Allowance.
Ethan says, “My treatment has been really hard. There are times when I’ve been really sick from treatment and then the next day I’ll feel OK. My moods change from day to day too, and my appetite changes, so I can never tell what I’ll feel like.
“I don’t think people realise what it’s like to have chemotherapy, they think that you have to take little tablets, but it’s more than that.
“I’ve kept in touch with close friends and had a couple of friends visit me in the hospital. They were able to realise what it was like for me then.
“We don’t have anyone visiting at home to help with my education at the moment, so I have to make sure I try to keep up with work in hospital, which is hard.
“People tease you even though they don’t know they’re doing it. My friends will tell me about going out, and they don’t know I can’t do certain things. I really want to go out on my scooter or go and do archery or play golf like I used to, but I can’t.”