Daisy, 10, was diagnosed with Ewing’s Sarcoma, a bone cancer, in November 2014. She was eight-years-old and had been complaining of a pain in her leg on and off for around eight weeks. Her family were supported by a CLIC Sargent Social Worker and stayed in one of our Homes from Home during Daisy’s treatment.
Daisy’s mum Jane originally thought her daughter was going through growing pains.
She said: ”My husband Simon had a look and found a small swelling, and when he found it to be warm, compared to the other leg, he asked me to take her to the GP, which I did reluctantly, apologising to the doctor for wasting his time!
“We had loads of tests, MRI scans and biopsies before it was totally confirmed. I was devastated - I was going out the door on the school run. When I eventually got the kids to school I broke down in the playground. That first week was unimaginable.”
Daisy’s first session of chemotherapy began in December 2014, and ran until March 2015.
“Our CLIC Sargent Social Worker Rebekah was also fantastic, she’s an amazing woman. She helped us with so much of the practical stuff we needed to do, like advice on how to fill out benefits forms for financial assistance, as I had to stop working to care for Daisy, and Blue Badge forms as Daisy had to use a wheelchair to get around. She was always there for a chat if I needed one.”
In May 2015 Daisy had major surgery to remove the cancer from her leg, but there were complications with infections and her mobility was affected. She is now off-treatment and in rehabilitation.
Tackle little chunks
Jane said: “Daisy has been really upbeat throughout it all, but I think she’s had enough now.
“Her mobility is improving slowly but there’s a long way to go, she still has a cast. The hope is that she’ll be able to walk again in the future.
“The advice I’d give to other parents who have just found out their child has cancer is try to keep your head as much as you can. Try not to fall apart. Tackle little chunks one at a time or it will be too much to think about and overwhelm you.
“And talk to people about how you are feeling, as many people as you can, medical staff, friends, CLIC Sargent, and your family. You will always find somebody who will be a shoulder to cry on.”
Help us be there
CLIC Sargent can only currently reach two out of the three young people who need our support. Please donate online to help CLIC Sargent continue its work and reach three out of three young cancer patients.