You can download and print PDFs from this page and add them to your diary to record some treatment information.
These inserts include contact information and sign-in sheets for professionals involved in your child’s care, as well as covering aspects of treatment such as blood results and side effects. You can print off as many copies as you like and insert them in your diary to help keep track of your child’s treatment.
- Introductory information: Guidance on how to use this diary to help effective communication between family and professionals
- Professional sign in sheet: For professionals to use who have agreed to write in your diary
- Contact information of professionals: Keep a record of contact information of professionals involved in your child’s care
- Appointment schedule: To keep track of upcoming appointments and meetings
- Record of blood results: A full blood count (FBC) measures the number of different types of blood cells in the blood. This is one of the main ways to monitor the side effects of treatment
- Record of height and weight: To monitor any changes
- Side effect scoring chart: Guidance on how to score in the Side effect patient’s diary
- Side effect patient’s diary: To be used to record the degree of side effects, according to the descriptions on the Side effects scoring chart.
- Essential information and central line maintenance: To be completed at each dressing change or port needle change.
- Naso-gastric tube gastrostomy change record: To be completed at each change
- Insuflon change record: An Insuflon is a device that goes into the soft tissue beneath the skin and is used to give some treatments.
- Notes: Lined pages for note-taking
- Illness and infection: Informing the hospital and when to get in contact