Charlie from Buckhaven, Fife was two-and-a-half when he was diagnosed with stage 4 neuroblastoma.
Evonne, Charlie’s mum said:
“The whole experience of Charlie’s treatment was very stressful. It was very hard and when you hear that your child has cancer you are just stuck. You just think ‘why did this happen?’
"The treatment lasted 16 months. He had high dose chemotherapy and stem cells, and surgery to remove the main tumour and his adrenal gland.
Hard for the family
“When he first started chemotherapy he was having very regular cycles. Following on from that, he had the radiotherapy. Then he had his stem cells back and he then had immunotherapy.
“The whole experience has been hard for the family. He has two older brothers and they are only just starting to get some normality back. It’s very hard to keep things normal when your whole life turns upside down.
“Our lives were turned upside down and we’ve been through so much, but Heather our CLIC Sargent Support Worker got us all through it.
“She was really lovely and she was there to give us support and direct us to any financial support we could have. She was great at keeping Charlie entertained as well.
“Her support helped us see the light at the end of the tunnel, and we are so happy that he’s now in remission.
“We finally got him home and when he went back to nursery one of the toys he wanted to play with a lot was the hospital. He identified with hospitals – he had actually got used to living there.
Home from Home
“CLIC Sargent is just wonderful, especially CLIC Villa, which is where I would spend a lot of my time. It was a great place. It made a huge difference for us and it saved a huge amount of expense. It is so important to know that your child is safe and sleeping and having somewhere you could go and put your feet up and have a sleep."
Be there for all of them
Right now, for every two families like Charlie’s there's one not currently receiving the support they desperately need. We want to be there for all of them.
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