Eleven-year-old Cai from Swansea was diagnosed with a brain tumour when he was eight years old.
Jo, Cai’s mum, said:
“When I first heard the news I just went numb. I was just going through the motions. Thank god that everything happened so quickly in a way, so we didn’t really have time to process things. We were just on to the next thing to do.
“The whole thing has been unbelievably stressful and difficult for us all. I was on my last legs and there were lots of times when I just thought I couldn’t cope.
“Cai started chemotherapy and things were really difficult and that was when Jane, our CLIC Sargent Key Worker Nurse, came to him. That was when things finally started falling into place. We started to see a change and things were getting a bit better. She started to develop a relationship of trust with him and it made a real difference.
“Before Jane one of the real problems was the fact that we didn’t feel like these different teams and hospitals and all of these people were actually talking to each other and all working together. There was no communication and we didn’t know who to talk to and who to take questions to.
“We could really see the difference when Jane came. She completely changed things around. It was fantastic. The great thing about what Jane did is that she gave him options and choice. She would come to the house and save us from what was a 50 mile trip. She was so patient with him and they developed a trust.
“I still go to Jane now when I have questions or want to talk about anything. It is great to have that personal connection with someone. ”
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