My 16 year old son has just been diagnosed with Alveolar Rhabdomyosarcoma. We went to our gp in november and only got referal in march. He has a lump on the outside of his ankle, not painful but getting bigger. So far we know the mri shows the lymph glands are normal, and we are currently waiting for the bone marrow results. Then we will have a plan worked out. We think it is likely to be 4 lots of chemotherapy for 4 days at a time, before surgery. Afterwards we were told 6 more chemo, but on the possible plan we looked at this week it says radiotherapy afterwards, not chemo so I am a little confused. I would like to hear from anyone who has experienced similar diagnosis as. I am too scared to ask what the chances are he will get better? My son thinks he is going to die, and because it is the easter holidays the school don't even know yet. Dreading that phone call.
11th April 2013#1
diagnosed last week