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Original topic post: neuroblastoma
posted: 07.12.2011
message: My son aged 4 has been diagnosed with Neuroblastoma. He has a tumour in his tummy and secondaries in his bones and bone marrow. Is there anyone with experience of this disease, who would like to share their stories? He has started chemo and is on the high risk pathway, having chemo every 10 days for 80 days. We are struggloing at the mo, since he as at home, managing feeds through his NG and the enormity of it all. Just as you have a few days at home as a family he has to go back into hospital for more chemo for a couple of days. We feel we have supportive friends, but no one realy understands the process and adjustments this diagnosis has had on our lives.
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