HART trial treatment for medulloblastoma

message: Hi Rob, my son was recently diagnosed with medullablastoma and he has started on the HARt trial. Did you go ahead with the trial for your son? How are things going. Maybe it would help if we could share our experiences with this treatement.

message: Hi, our daughter is coming towards the end of the trial. she was diagnosed in September last year and we felt that we had little choice given the extent to which her tumour had spread. the radiotherapy went well apart from the burning towards the end - polyfax and duoderm were fantastic for soothing and healing. the chemo has been tough, she managed 3 cycles on cisplatin, ccnu and vincristine before having to drop the cisplatin. she then had 2 cycles with carboplatin in place of cisplatin and is now about to start her second cycle with only ccnu and vincristine. her results are good, just keeping an eye on what they think may be scar tissue at the moment.
best of luck with it all, very happy to share experiences of this trial if you think it might be useful.

message: Hi, Rob. Have only just registered with this site and wanted to learn more about what the HARt trial involved. My 8 yr old son, Samuel was diagnosed with medullablastoma in Oct 06, and after an op, 31days of radio followed by 8 courses of chemo (which finished January 08) he is now doing very well, and has had 2 scans which are all clear and we are very positive about his future. I don't recall hearing about a HART trial, but would be interested to learn what the difference in protocol is (if any) and if you need any advice or would like to chat about our experiences I would be very happy to help. Wishing your son all the very best of luck.

message: Hi, my 7 year old son has just had his tumour removed and so far so good.. we are about to start a long course of radiotherapy and chemo and are aware of all the horrible long and short term side affects. I would be really interested to hear from anyone who has gone through this particular tumour and how you got on with the treatment etc. Thanks

message: Hi, my 7 year old son has just had his tumour removed and so far so good.. we are about to start a long course of radiotherapy and chemo and are aware of all the horrible long and short term side affects. I would be really interested to hear from anyone who has gone through this particular tumour and how you got on with the treatment etc. Thanks

message: Hi, my 7 year old son has just had his tumour removed and so far so good.. we are about to start a long course of radiotherapy and chemo and are aware of all the horrible long and short term side affects. I would be really interested to hear from anyone who has gone through this particular tumour and how you got on with the treatment etc. Thanks

message: Hi last year I was asking for advice about the HART Trial. Our son did take part in the trial and after what seemed like endless treatment he is doing really well, the last 2 scans showed that all is well and we are now concentrating on getting things back to 'normal'. If anyone wants to know about what the treatment involves please feel free to contact me.