for wednywoo/ eves mum

message: hiya, i have just read your other post. i felt exactly the same way as you, i felt like my whole world had changed but nobody could give me the answers i was looking for i.e. what do i do when eve is neutropenic, do i have to stay indoors all the time, is there anybody outside the hospital i can talk too. i was constantly told by the hospital that when eve was changed to regimen c she would be really ill and that she could not go to nursery. eve never became ill and sailed through her treatment, i eventually got fed up asking if eve could go to nursery and just sent her. at first i was terrified of going out and meeting other people incase they were ill, but eventually for my own sanity i just started going out. i would go to the gyle to meet my friends for coffee, we used to go at 9 in the morning because it was always empty. eve missed out on all her friends birthday partys in the first year which is really hard. have you been in touch with cclasp yet, they do xmas parties, easter parties, summer picnic. they are really supportive and you know that you can go to these parties because all the kids are in the same situation and the parents understand what you are going through. i think alot of people don't understand how careful you have to be about germs etc.and i did feel uncomfy asking people to constantly wash their hands before coming into contact with eve. eventually though i am finding my feet and trying to make the most of each day. i am now having to adjust to eve starting school. i have had her to myself for the last year. part of me wants her to go to school because that is what normal children do, but i really miss her. sorry if this is a bit scrambled. my email address is <email address removed> contact me anytime. hope gregor is doing fine, eve was in hospital last night with a temp, being sick and diaorreah. they put her in a cubicle but did not put her into isolation. we got out this morning because she is not neutropenic and shona called this afternoon to say that she has swine flu. daphne dropped of tamiflu tonight for eve to start taking, but my son sam is not well and i am feeling a bit dodgy, annoyed with hospital for not taking things a bit more seriously. take care and will speak to you soon

message: Hi there both

If you would like to exchange email addresses, then please could you both contact us via the contact link at the foot of the page and I can forward the addresses to you both.

Our forums automatically remove email addresses when they are added as part of our safeguarding policy, but If you would both like to swap I'm happy to arrange that for you.

Many thanks
Helen
CLIC Sargent

message: Thats terrible about eve i hope she gets better soon u must b worried sick. I contacted cclasp and am waiting to hear back so thats done hehe. it is so hard i miss gregor playing with kids all my friends have kids n we used to meet up 2 days per week we miss this now but i dont no how strick to be with him its so hard hes at the age he want to interact with kids i see his face when he sees other kids its a shame i devistates me to see him like that.
well contact me at my email address b great to keep intouch n thank you so much. I hope u all get better eve stays strong. our love x x