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Home > Publications & resources > Useful organisations > For parents >Association for Children's Palliative Care (ACT)
Working to improve care and services for all children in the UK with life-threatening or terminal conditions and their families.
Carers Direct
Offers a wide range of information, advice and support for carers of all ages.
Web: http://www.nhs.uk/carersdirect/Pages/CarersDirectHome.aspx
top of pageContact a Family (CAF)
Contact A Family provide Family Workers who can help with any of the wide range of issues that families can face when caring for a disabled child. Family workers offer one-to-one help to families caring for a child aged 0-19 years of age, with any kind of disability.
Web: www.cafamily.org.uk/families/adviceandsupport/familysupportservice.html
top of pageDisabled Living Foundation
Disabled Living Foundation is a national charity that provides impartial advice, information and training on daily living aids.
Web: www.dlf.org.uk/
top of pageHats 4 Heads
Hats 4 Heads aims to provide stylist hats for all ages with one main requirement: they must be comfortable for people who have lost their hair through illness.
Web: www.hats4heads.co.uk/about.html
top of pageHome Start
Network of trained parent volunteers who support thousands of parents who are struggling to cope.
top of pageLATCH
LATCH is a voluntary organisation set up to support the special requirements of the children’s oncology centre in Wales - based at the Children’s Hospital for Wales - to help affected families, and promote research into childhood cancer.
Web: http://www.Latchwales.org
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MATTDOTCOM
MATTDOTCOM's mission statement is to provide teenagers, suffering from long term or life threatening illnesses, with access to computer technology thereby enabling them to continue their education and maintain contact with their school.
Web: www.mattdotcom.org.uk/4736.html
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Rainbow Trust
Rainbow Trust Children's Charity provides practical and emotional support to families who have a child with a life threatening or terminal illness.
Web: www.rainbowtrust.org.uk/Family_Services/family_support/
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