For parents

Below is a list of useful organsiations that help parents of children with cancer.

Leading UK children's healthcare charity, ensuring that sick children always receive the highest standard of care possible.
Address: Midlands Office, No 3, Abbey Business Centre, Keats Lane, Earl Shilton, Leicestershire, LE9 7DQ
Tel: +44 (0)1455 845 600
Fax: +44 (0)1455 845 593
Web: http://www.actionforsickchildren.org/ top of page

Working to improve care and services for all children in the UK with life-threatening or terminal conditions and their families.
Tel: +44 (0)117 922 1556

Email: info@act.org.uk
Web: http://www.act.org.uk top of page

Aims to be the leading professional body for counselling and psychotherapy and an automatic reference point for anyone seeking information on counselling and psychotherapy in the United Kingdom.
Address: BACP House, 35–37 Albert Street, Rugby, CV21 2SG
Tel: +44 (0)870 443 5252
Email: bacp@bacp.co.uk
Web: http://www.bacp.co.uk top of page

Provides in person and telephone counselling for cancer patients, their families, friends and care givers who seek counselling to help them through the difficult issues precipitated by a cancer diagnosis.
Address: 1 Noel Road, London, N1 8HQ
Tel: +44 (0)20 7704 1137
Fax: +44 (0)20 7704 8620
Email: support@cctrust.org.uk
Web: http://www.cctrust.org.uk/ top of page

Address: Children's Day Hospital, St.James's University Hospital, Leeds, LS9 7TF
Tel: +44 (0)113 247 0372
Fax: +44 (0)113 2470 248
Email: sally.amos@leedsth.nhs.uk
Web: http://www.candlelighters.org.uk top of page

Information about retinoblastoma - what it is, diagnosis and treatment and long-term consequences (includes a section especially written for children).  CHECT also provides practical support to families of children with the disease.

Address: Childhood Eye Cancer Trust, The Royal London Hospital, Whitechapel Road, London E1 1BB
Tel: 020 7377 5578
Email: info@chect.org.uk
Web: http://www.chect.org.uk/index.php top of page

Based in Edinburgh, CCLASP is a children's charity run by parents, whose children have been affected by various types of cancer.
Address: Valerie Simpson, Unit 24, North Leith Sands, Edinburgh, EH6 4ER
Tel: +44 (0)131) 467 7420
Fax: +44 (0)131 467 7421
Email: cclasp@hotmail.com
Web: http://www.cclasp.net/ top of page

The Trust helps families, by providing emotional and practical support for the whole family such as befriending and bereavement support, to Play Therapy and holidays in Florida.
Address: 62 Walter Road, Swansea, SA1 4PT
Tel: +44 (0)1792 480 500
Fax: +44 (0)1792 480700
Email: enquiries@childrens-cancer-care.org.uk
Web: http://www.childrens-cancer-care.org.uk top of page

Contact a Family is the only UK charity providing support and advice to parents whatever the medical condition of their child.
Address: 209-211 City Road, London EC1V 1JN
Tel: +44 (0)20 7608 8700
Fax: +44 (0)20 7608 8701
Helpline: +44 (0)808 808 3555 or Textphone +44 (0)808 808 3556(Mon - Fri, 10am - 4pm)
Email: info@cafamily.org.uk
Web: http://www.cafamily.org.uk/ top of page

DIPEx has information about a wide variety of personal experiences of health and illness. Find reliable information on treatment choices and where to find support.
Address: 7200 The Quorum, Oxford Business Park North, Oxford, OX4 2JZ
Tel: +44 (0)1865 487 176
Email: info@dipex.org
Web: http://www.dipex.org
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A parent-to-parent telephone listening and support services for parents of a child with cancer.
Tel: 0845 121 4277 (Mon-Sun, 8pm-10pm)
Web: http://www.gaps.uk.com/ top of page

The International Confederation of Childhood Cancer Parent Organisations (ICCCPO) is a worldwide network of organisations of parents of children with cancer
Address: ICCCPO Secretariat, c/o VOKK, Schouwstede 2d., 3431 JB Nieuwegein, Netherlands
Tel: +31 (30) 242 2944 (Netherlands)
Fax: +31 (30) 242 2945 (Netherlands)
Email: icccpo@vokk.nl
Web: http://www.icccpo.org/ top of page

Provides information on all aspects of cancer.
Tel: 1 800 200 700
Web: http://www.cancer.ie/ top of page

LATCH is a voluntary organisation set up to support the special requirements of the children’s oncology centre in Wales - based at the Children’s Hospital for Wales - to help affected families, and promote research in childhood cancer.
Address:
Tel: +44 (0)29 2074 8858
Email: latchcharity@aol.com
Web: http://www.Latchwales.org
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A national society that provides financial help to children and their families. Has holiday homes for crisis breaks.
Address: Lennox House, 57 Mawney Road, Essex RM7 7HL
Tel: +44 (0)1708 734 366
Fax: +44 (0)1708 749 421
Email: vnash@lennoxccf.org.uk
Web: http://www.lennoxccf.org.uk/ top of page

Macmillan Cancer Support provides practical, medical, emotional and financial support and push for better cancer care.
Address: 89 Albert Embankment, London SE1 7UQ
Tel: +44 (0)20 7840 7840
Helpline: +44 (0)808 808 2020 (Mon - Fri, 9am - 6pm)
Email: cancerline@macmillan.org.uk
Web: http://www.macmillan.org.uk top of page

The National Alliance of Childhood Cancer Parent Organisations (NACCPO) is made up of parent run organisations that have common aims of working together to support children with cancer.
Address: PO Box 176, Bromley, BR2 7YN
Tel: +44 (0)1785 603 763
Email: ro@naccpo.org.uk
Web: http://www.naccpo.org.uk top of page

A charity whose aim is to fund research into the illness and support parents whose children have been affected by the disease.
Address: Beverley House, Frilford, Abingdon, Oxfordshire, OX13 5NU
Contact: Mrs Antonya Cooper (Chairman)
Tel: +44 (0)1865 391 207
Email: info@nsoc.co.uk
Web: http://www.nsoc.co.uk/ top of page

Provides and modifies equipment for people with disabilities.

Tel: 0845 130 0456

Web: http://www.remap.org.uk/index.htm

This is website and downloadable booklet for families where a child has been diagnosed with rhabdomyosarcoma.  The booklet provides all the general information you will need to know about your child's illness, including  facts about diagnosis and treatment, practical information on what to expect as your child embarks upon his or her course of treatment, definitions of medical terms and information about the medical team responsible for the care of your child.

Web: http://www.rhabdomyosarcomabooklet.org.uk/

Offers support and information to children and adults with brain tumours and their families. The trust also funds research into brain tumours.

Address: Samantha Dickson Brain Tumour Trust, Century House, High Street, Hartley, Wintney, Hampshire, RG27 8NY

Tel: 0845 130 9733
Email: patientinfo@sdbtt.co.uk
Website: http://www.braintumourtrust.co.uk/   top of page

Provides free Counselling, befriending, complementary therapy, leaflets and financial assistance.
Address: Bellis House, 11 Westwood Road, Southampton, SO17 1DL
Tel: +44 (0)23 8067 2200
Helpline: +44 (0)23 8067 2255 /+44 (0)1794 830 374
Email: wct@wessexcancer.org
Web: http://www.wessexcancer.org/
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Information about medulloblastoma and research carried out into the illness.  There is also an online forum for parents.

Email: enquiries@williamdoolin.com
Web: http://www.williamdoolin.com/home.html
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Offers practical support and guidance to families, professionals and anyone concerned about a grieving child.

Address: Winston's Wish, The Clara Burgess Centre, Bayshill Road, Cheltenham, GL50 3AW

Tel: +44 (0) 1242 515157

Helpline: 08452 03 04 05

Fax: +44 (0) 1242 546187

Email: info@winstonswish.org.uk

Web: http://www.winstonswish.org.uk/