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Home > Publications & resources > Useful organisations >- Action Cancer - Northern Ireland
- Action for Sick Children
- Brain and Spine Foundation
- Brain Tumour UK
- Cancer Research UK
- Children with Leukaemia
- Children's Cancer and Leukaemia Group
- Clinical Trials Information
- Irish Cancer Society
- Leukaemia CARE
- Leukaemia Research Fund
- Lymphoma Association
- Macmillan Cancer Support (incorporating Cancerbackup)
- Marie Curie Cancer Care
- Medicines for children
- Medikidz Explains Leukaemia
- Neuroblastoma Society
- Patient Advice and Liaison Service (PALS)
- Pediatric Oncology Resource Centre
- Rhabdomyosarcoma booklet
- Samantha Dixon Brain Tumour Trust
- Tenovus Cancer Information Centre
- Testicular cancer
- The Childhood Eye Cancer Trust
- Wessex Cancer Trust
- William Doolin Fund (Medulloblastoma)
Action Cancer - Northern Ireland
Northern Irelands leading local cancer charity.
Web:http://www.actioncancer.org/
top of pageAction for Sick Children
The UK's leading children's healthcare charity, specially formed to ensure that sick children always receive the highest standard of care possible.
Web: www.actionforsickchildren.org
top of pageBrain and Spine Foundation
Provide information and support for adults and children affected by neurological conditions.
Web: http://www.brainandspine.org.uk/
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Brain Tumour UK
Provides practical and emotional support to brain tumour patients and their families.
Web: http://www.braintumouruk.org.uk/index.htm
top of pageCancer Research UK
UK’s leading charity dedicated to cancer research.
Web:http://www.cancerresearchuk.org/
top of pageChildren with Leukaemia
The UK's leading charity dedicated to fighting Britain's biggest childhood cancer.
Web: www.leukaemia.org
top of pageChildren's Cancer and Leukaemia Group
The CCLG is a national professional body responsible for the organisation of the treatment and management of children with cancer in the UK. The Group's main remit is the coordination of national and international clinical trials, including biological studies. Other areas of activity include national cancer registration and provision of information for patients and families. The CCLG was formally the UK Children's Cancer Study Group.
Web: www.cclg.org.uk
top of pageClinical Trials Information
A database of cancer trials. Through this you can search trials which are open and recruiting patients, trials that have closed or trials with results.
Web: www.cancerhelp.org.uk/trials/trials/default.asp
A booklet designed to help parents and young people understand more about clinical trials and answer some of the many questions that people have about entry onto clinical trials.
Web: www.cclg.org.uk/families/booklet.php?bid=21&3id=2id=8
top of pageIrish Cancer Society
Irish National cancer care charity whose mission is to play a vital role in achieving world-class cancer services in Ireland, to ensure fewer people get cancer and those that do have better outcomes.
Web: www.cancer.ie
top of pageLeukaemia CARE
Leukaemia CARE exists to provide vital care and support to all those whose lives have been affected by leukaemia, lymphoma, myeloma and the allied blood disorders. Their work extends to the welfare of families and carers, as well as that of patients themselves.
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Leukaemia Research Fund
Funds research into all forms of leukaemia and related blood cancers.
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Lymphoma Association
Emotional support and information for anyone with lymphatic cancer (including Hodgkin and Non Hodgkin) and their family.
Web: http://www.lymphomas.org.uk
top of pageMacmillan Cancer Support (incorporating Cancerbackup)
Information about childhood cancer and details of where to get support.
Web: http://www.cancerbackup.org.uk/Home
top of pageMarie Curie Cancer Care
Provide care to cancer patients and their families both in the community and within their hospices.
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Medicines for children
Web-site providing easily understandable information about medicines which may be prescribed for children.
Web: www.medicinesforchildren.org.uk
top of pageMedikidz Explains Leukaemia
Blending fun with fact, the Medikidz help children and young people learn about leukaemia in a humorous and engaging way.
Visit the Medikdz website for more information.
top of pageNeuroblastoma Society
This society raises funds for British research into the disease and offers advice and support for anyone affected by neuroblastoma.
Web: www.nsoc.co.uk
top of pagePatient Advice and Liaison Service (PALS)
Service introduced to ensure that the NHS listens to patients, their relatives, carers and friends. Answers their questions and resolves their concerns as quickly as possible.
Web: www.pals.nhs.uk/
top of pagePediatric Oncology Resource Centre
A web-site for parents, friends and families of children who have or had childhood cancer. Created by and for people who know young people who are receovering from cancer
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Rhabdomyosarcoma booklet
This website was created to enable parents and families whose children have been diagnosed with rhabdomyosarcoma to access a new booklet about the condition. The booklet was written by Dianne Haley whose daughter Claire was diagnosed and treated for rhabdomyosarcoma in 2004/05 at the Royal Hospital for Sick Children in Edinburgh.
Dr Jon Pritchard, Dr Hamish Wallace, Sister Caroline Rose and the wider team at the Royal Hospital for Sick Children and the Western General Hospital in Edinburgh provided professional medical advice for the booklet.
Web:http://www.rhabdomyosarcomabooklet.org.uk/
top of pageSamantha Dixon Brain Tumour Trust
Leading charity dedicated to brain tumour research, and patient information and support in the UK.
Web: www.braintumourtrust.co.uk
top of pageTenovus Cancer Information Centre
Welsh cancer charity taking cancer care, treatment and prevention messages into the community.
Web: www.tenovus.org.uk
top of pageTesticular cancer
A web-site providing information on a range of issues surrounding testicular cancer.
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The Childhood Eye Cancer Trust
UK wide charity for families and individuals affected by retinoblastoma. They offer support and information, fund research and raise public awareness of this rare cancer.
Web: www.chect.org.uk
top of pageWessex Cancer Trust
Independent charity comitted to supporting and improving cancer services in the Wessex region.
Web: www.wessexcancer.org
top of pageWilliam Doolin Fund (Medulloblastoma)
Specifically and only concerned with medulloblastoma. Information is given in the context of personal experience and links are given to professional information.
Web: www.williamdoolin.com/home.html
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