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Action Cancer - Northern Ireland

Northern Irelands leading local cancer charity.

 

Web:http://www.actioncancer.org/

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Action for Sick Children

The UK's leading children's healthcare charity, specially formed to ensure that sick children always receive the highest standard of care possible.

 

Web: www.actionforsickchildren.org

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Brain and Spine Foundation

Provide information and support for adults and children affected by neurological conditions.

Web: http://www.brainandspine.org.uk/

 

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Brain Tumour UK

Provides practical and emotional support to brain tumour patients and their families.

 

Web: http://www.braintumouruk.org.uk/index.htm

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Cancer Research UK

UK’s leading charity dedicated to cancer research.

 

Web:http://www.cancerresearchuk.org/

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Children with Leukaemia

The UK's leading charity dedicated to fighting Britain's biggest childhood cancer.

 

Web: www.leukaemia.org

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Children's Cancer and Leukaemia Group

The CCLG is a national professional body responsible for the organisation of the treatment and management of children with cancer in the UK. The Group's main remit is the coordination of national and international clinical trials, including biological studies. Other areas of activity include national cancer registration and provision of information for patients and families. The CCLG was formally the UK Children's Cancer Study Group.

 

Web: www.cclg.org.uk

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Clinical Trials Information

A database of cancer trials. Through this you can search trials which are open and recruiting patients, trials that have closed or trials with results.

 

Web: www.cancerhelp.org.uk/trials/trials/default.asp

 

A booklet designed to help parents and young people understand more about clinical trials and answer some of the many questions that people have about entry onto clinical trials.

 

Web: www.cclg.org.uk/families/booklet.php?bid=21&3id=2id=8

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Irish Cancer Society

Irish National cancer care charity whose mission is to play a vital role in achieving world-class cancer services in Ireland, to ensure fewer people get cancer and those that do have better outcomes. 

 

Web: www.cancer.ie

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Leukaemia CARE

Leukaemia CARE exists to provide vital care and support to all those whose lives have been affected by leukaemia, lymphoma, myeloma and the allied blood disorders. Their work extends to the welfare of families and carers, as well as that of patients themselves.

 

Web: www.leukaemiacare.org.uk

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Leukaemia Research Fund

Funds research into all forms of leukaemia and related blood cancers.

 

Web: http://www.lrf.org.uk/

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Lymphoma Association

Emotional support and information for anyone with lymphatic cancer (including Hodgkin and Non Hodgkin) and their family.

 

Web: http://www.lymphomas.org.uk

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Macmillan Cancer Support (incorporating Cancerbackup)

Information about childhood cancer and details of where to get support.

 

Web: http://www.cancerbackup.org.uk/Home

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Marie Curie Cancer Care

Provide care to cancer patients and their families both in the community and within their hospices.

 

Web: www.mariecurie.org.uk

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Medicines for children

Web-site providing easily understandable information about medicines which may be prescribed for children.

 

Web: www.medicinesforchildren.org.uk

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Medikidz Explains Leukaemia

Blending fun with fact, the Medikidz help children and young people learn about leukaemia in a humorous and engaging way.

 Visit the Medikdz website for more information.

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Neuroblastoma Society

This society raises funds for British research into the disease and offers advice and support for anyone affected by neuroblastoma.

 

Web: www.nsoc.co.uk

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Patient Advice and Liaison Service (PALS)

Service introduced to ensure that the NHS listens to patients, their relatives, carers and friends. Answers their questions and resolves their concerns as quickly as possible. 

Web: www.pals.nhs.uk/

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Pediatric Oncology Resource Centre

A web-site for parents, friends and families of children who have or had childhood cancer. Created by and for people who know young people who are receovering from cancer

 

Web: www.acor.org/ped-onc/

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Rhabdomyosarcoma booklet

This website was created to enable parents and families whose children have been diagnosed with rhabdomyosarcoma to access a new booklet about the condition. The booklet was written by Dianne Haley whose daughter Claire was diagnosed and treated for rhabdomyosarcoma in 2004/05 at the Royal Hospital for Sick Children in Edinburgh.

Dr Jon Pritchard, Dr Hamish Wallace, Sister Caroline Rose and the wider team at the Royal Hospital for Sick Children and the Western General Hospital in Edinburgh provided professional medical advice for the booklet.

 

Web:http://www.rhabdomyosarcomabooklet.org.uk/

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Samantha Dixon Brain Tumour Trust

Leading charity dedicated to brain tumour research, and patient information and support in the UK.

 

Web: www.braintumourtrust.co.uk

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Tenovus Cancer Information Centre

Welsh cancer charity taking cancer care, treatment and prevention messages into the community.

 

Web: www.tenovus.org.uk

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Testicular cancer

A web-site providing information on a range of issues surrounding testicular cancer.

 

Web: www.dontbeaschmuck.org/

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The Childhood Eye Cancer Trust

UK wide charity for families and individuals affected by retinoblastoma. They offer support and information, fund research and raise public awareness of this rare cancer.

 

Web: www.chect.org.uk

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Wessex Cancer Trust

Independent charity comitted to supporting and improving cancer services in the Wessex region.

 

Web: www.wessexcancer.org

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William Doolin Fund (Medulloblastoma)

Specifically and only concerned with medulloblastoma. Information is given in the context of personal experience and links are given to professional information.

 

Web: www.williamdoolin.com/home.html

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