Personal Details

My son Perry aged 10 was diagnosed with a brain tumour (cerebellum) in Feb 2008 . I would like to say how grateful i am that our local gp recognised perrys symptons and acted immediately. It all started with a trip to the dr friday am as perry's balance seemed a bit off and had complained of double vision ( which the optician a few days earlier had said he didnt have) a few headaches but nothing past go to school u'll be fine and he said no more, but i thought i would take him to dr to make sure thinking ear infection or something like that as Perry is a toe walker so balance not perfect anyway. Our gp did a few co-ordination tests on perry and noticed his right side was not good,very woobly, she said she had to speak to a paedatrician at local william harvey and would call us later, We got a call at lunch time to go straight to william harvey Ashford, which they then did same tests then a ct scan. Its was then that evening we was was given the worse news you could ever fear my son had a brain tumour and would need to go straight to Kings College hospital London which we was taken by ambulance that evening, as you can imagine me and husband and family were in great shock as our little boy seemed healty and fine (which are his words I'm Fine)and all this in a matter of 12 hours.
We was then told he would be operated on in a few days after steroids.
My son had the lenghtly op and was told complete success got it all perry will be fine Biopsy results few days later great news it is benign. Just got to have 3 month check ups. So his 1st check up and Unfortunately to be told it has come back which is very unusual as it is a benign tumour and not normal to grow back this quick in a matter of months if they ever did. He then had 2nd op straight away, but unfortunately this time they couldn't remove it all, as it is also on his brain stem. We was then told further treatment would be needed this also came back as benign but it is acting like a malignant tumour so we are now not a text book case. Perry is now having Radiotherapy 6 wk course at the Marsden Surrey and he only has 2 more to go to finish. then we wait another 3 months to see if all ok.
Sorry this has gone on a bit,but probably like others it is nice to know the full story and hopefully may help others in there battle.
I can agree with a lot of parents out there Perry has been amazing through the whole of this since being diagnosed, operated and treated on that puts us adults to shame over some things we moan about, he hasnt moaned once about any of the procedures hes had done, he is a true Hero ( whih is what all my friends and family call him). I have found this site a great comfort on some evenings when sleep is hard. I just sit and pray most evenings that he will be ok. I would also like to say a big thanks for the flat that we have stayed in for the last 6 weeks has been fantastic and made the whole process a lot easier, a real home from home.
Thanks for reading my story it has helped to talk about it as yet another evening where i cant sleep .xx