Merchandise

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Original topic post: Merchandise

written by: Adzilla
posted: 16.01.2008

message: who is in favour of pink clic hoody's with white writing and white clic hoody's with pink writing? :)


Reply 1: npc

written by: maddison123
posted: 10.02.2008

message: hi my names becky, my son was told he had nasal pharyngeal carcinmona last oct 21st 07, hes was t4,staged, hes had 3 lots chemo 3 weeks apart and 30 lots radio, well hes had 25 his last week is this week, we live a 7 hr round trip to the hosp daily,from mon were stayin at hosp, coz jack is not well, mainly mouth and thoart, he is 14, i cant believe another child had n p c. i now of 1 adult in canada, but thats all, how old are u and how are u doing, u sound well,, its really boosted me to of saw ur profile, c ya, becky


Reply 2: n.p.c

written by: Adzilla
posted: 15.02.2008

message: i am 16 i was diagnosed at 15 not a good time because of my G.C.S.E's. i am doin very well thank you back to the hospital every 6 weeks for check ups and every 3 months foe M.R.I scans. i have never heared of another child with n.p.c so its nice to know i am not the only one. i had roughly the same treatment as your son so if he needs any advice on any topics to do with his feeling emotions or treatmen tjust let me know and i will reply a.s.a.p!!! speak to u soon becky from adam!!! :)


Reply 3: (No Subject)

written by: maddison123
posted: 24.02.2008

message: jacks meant to chose his sats subjects this year buut his been of since september, im gonna phone the school and try and sort something out, his radiotherpys over,now hel have 6mths of interferlon, u had that didnt u / i hope ur doing o great, u sound like it,, do u have any longterm side effects? speak soon , love becky


Reply 4: (No Subject)

written by: Adzilla
posted: 25.02.2008

message: i did have inerferon!! u will probably have to do it for jack subcutaneously!! i am doin great thnx, the only long term side effetc i have is from radiotherapy which is i do not produce saliva!!! :( but i got used to it after a while i just need a bottle of water every where i go even in school. the school had to be notified coz they wern't agreed with having water on you!!! how is jack now after radio?? may i ask where r u from?? hope to hear from you soon, love adam :)



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