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Original topic post: RETINOBLASTOMA
posted: 15.09.2008
message: HI MY GRANDSON WHO IS ONLY 3 MONTHS OLD HAD JUST BEEN DIAGNOSED WITH THIS CANCER, HE IS BLIND IN ONE EYE AND CAN SEE A BIT OUT THE OTHER, HE IS GETTING BLASTED WITH CHEMO AND LASER TREATMENT IS THERE ANYONE ESLSE WHO IS GOING THRO OR HAS GONE THRO TIS I DONT KNOW HOW TO HANDLE IT AT ALL HE SO SMALL TO GET SUCH A OT DONE TO HIM
Reply 1: RETINOBLASTOMA
written by:
debbie
posted: 21.09.2008
message: HI IS THERE NO ONE OUT THERE WHO CAN ADVISE ON HOW TO COPE WITH A GRANDSON WITH THIS CONDITION, IM AT A LOSS AS WHERE TO GET HELP FOR MYSELF IN DEALING WITH THIS
THANKS
Reply 2: RETINOBLASTOMA
written by:
debbie
posted: 21.09.2008
message: HI IS THERE NO ONE OUT THERE WHO CAN ADVISE ON HOW TO COPE WITH A GRANDSON WITH THIS CONDITION, IM AT A LOSS AS WHERE TO GET HELP FOR MYSELF IN DEALING WITH THIS
THANKS
Reply 3: RB
written by:
kibrial
posted: 05.10.2008
message: Debbie
I'm so sorry your family is going through this, do you have any local support? I know of a web site that was set up by a young lady who suffered RB as a child you may find infomation and support there http://www.orphancancer.org/home.html.
I hope this is of some help to you.
Lucy.
Reply 4: to debbie
written by:
gracie
posted: 08.10.2008
message: Hi Debbie, my son was diagnosied with a tumour jan 07" aged 8yrs. One of the first people to contact me was a friend I had lost contact with for a couple of years. When we were still friendly (I was pregnant with my son,born a few months after her grandson), aged three weeks he was diagnosied with a tumour on his kidney and had to have chemo, and opp; I couldnot beleive someone so young could go through this but he did and is now a healthy 10yr old, just been discharged from hospital!
Reply 5: To Debbie
written by:
gracie
posted: 08.10.2008
message: Also Debbie just recently read in the hospitals newpaper of a lady revisiting Alder Hey were she was treated for retinoblastoma during the late 1950s, she wanted to see how things had progressed. I do hope this helps you a little it is an unbearable time for you and your family as most people using this site know, good luck.
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