son v tired&schoolinh

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Original topic post: son v tired&schoolinh

written by: shella
posted: 17.09.2008

message: my on matty was diagnosed wif germinoma last year hes finished his chemo&radiotheraphy; in feb08.he his getin v tired durin the day but finds it hard 2 sleep of a nite.he started senior school in sept08 &his; finding it very hard to concenrte on his schoolwork&is; also forgetting wot hehas done in school.also p.e.is a chore he loves doin it but the problem is he is aching afta itarms legs tummy etc.hes now had 2 days off school through doin p.e lessons.anyone who has a child with germinoma or similar effects wif tirdiness&schooling; i ud like 2 here from u fanks shella


Reply 1: Re Matty

written by: neilhailstone
posted: 29.10.2008

message: Shella
First my best wishes to you and Matty. My youngest son was treated for leukaemia for six years and there were times when he too got very tired at times and other side effects from treatment. I commend Matty for carrying on with his schooling and yourself for all the support and care you are giving him.
I think it is most desirable that whenever possible he should continue with his schooling inc. P.E. It was very good for my son's morale to do this, and I saw it helping other children who I knew who were also being treated. In his case he played football when he could and yes he was very tired afterwards. I would say if Matty wants to give it a go then let him do it. And the commonsense bit as well of course. If you can see he needs to rest up a bit then thats the way to go on the day. I found it best to try and let my son do as much as he was possibly capable of. I know sometimes that is a fine judgement to make and I wish you well in everything you are doing to look after your son.

Best Wishes

Neil


Reply 2: to shella

written by: CharlotteAshworth
posted: 03.11.2008

message: hi. im only seventeen so i dont really know much about it.
my brother is exactly the same but he has form of cancer called a lymphoma.
he gets tired sometimes and can't walk very far. usually when this happens he has to have a blood transfusion at the hospital.
He hardly ever goes into school at the moment because of it so maybe it's just the side effects of the treatment.
i hope this helps.


Reply 3: charlotteashworth

written by: shella
posted: 04.11.2008

message: is your bro still having treatment or has he finished.matty finished treatment in feb.08 and still has the side effects.i just wish someone would tell me how long this lasts.matty started full time in school in sept.he is very tired&carnt; remember half the stuff his done that day.he also finished with schooling at home which doesnt make sense to me.he does love goin to school.making new mates.but half the time someone has something to say to him on his appearence.is your bro going back to school soon. it was good of you to get in touch& tell me thank you


Reply 4: neilhailstone

written by: shella
posted: 04.11.2008

message: thankyou so much for reading my post.matty started full time school in sept 08.he does love going to school but is still finding hard to keep up with other kids his own age.he really does love pe.on his first day he had pe tests which was excercising.now the school were he goes does know about him&still; made him do this.matty would not tell the teacher that he was tired&couldnt; carry on.the side effects that he has are still the same but getting a little better i think.do you know how long these side effects lasts cause no one i talk to seems to no even when i read up on it that doesnt give you the info you need.also matty still has trouble remembering what he done at school that day&kids; still have something to say about his appearance.matty has a old head on young shoulders&i; feel that he gets picked on or has very few mates.he wont tell me much about this&im; really worried.did your son have similiar issues or worries.


Reply 5: Free and confidential support available

written by: sallya
posted: 07.11.2008

message: Hello

If anyone would like someone to talk to, The Child Cancer Helpline is free, anonymous and confidential.

Lines are open Monday to Friday, 9am - 5pm. The number is: 0800 197 0068.

Best wishes

Sally, Web Moderater


Reply 6: To Shella

written by: neilhailstone
posted: 09.11.2008

message: I was sorry to read that Matty was getting innapropriate remarks about his appearance.My son was not on the receiving end of that and was surrounded by suportive friends at school.It might well be helpful to speak to the Head Teacher about this.I would hope that the situation can be improved by teachers at the school.In some cases it could simply be a total lack of understanding of the side effects of treatment.If there is bullying involved then the school will have an anti-bullying policy and they need to take all necessary action to stop it.
The side effects which are causing some temporary memory impairment and excesive tiredness I would say take up in detail with Matty's Physicians.I found that most Doctors and Nurses gave clear enough explanations about what was going on but when I didn't understand or wasn't satisfied I pursued the matter with them until I was clear in my own mind as to what was happening.In my experience nearly all medical professionals involved in these treatments have their hearts in the right place and are happy to explain things.Shella I hope things improve for Matty and my Best Wishes to You.
Neil Hailstone



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