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Original topic post: For neaney & pwilliam
posted: 18.08.2008
message: Hi, Just wanted to let you know that I have been keeping up with Jamie and Alicia's progress. Thinking of you all the time. I know I have come to the end of my tragic journey but I feel so much empathy for both your situations. I know how emotionally draining and stressful this whole experience can be. Your children are extremely brave having to deal with all that is happening to them. When my son Sean was poorly it amazed me how he kept bouncing back, no matter how much pain he was in he kept that beautiful smile on his face the whole time. I can honestly say that it was Seans spirit that got me through all the waiting of test results the worry of the treatment, and i'm sure your childrens bravery and positive attitudes are keeping you both going. It's amazing how resilliant children can be, they can teach us aldults a thing or two about never giving up. I wish you both love & support and wishing your children strength and courage to fight this.
Thinking of you all.
Louise Mom to angel Sean XX
Reply 1: (No Subject)
written by:
neaney
posted: 23.08.2008
message: hi louise,i wanted to say a huge thankyou for your post,i cant even begin to imagine how difficult it must be for you to read about other peoples children suffering at the hands of this awful disease. Jamie is almost at the end of the radiotherapy with only 3 more doses left to go,its been horrific to be honest but hes amazed me so much and has barely complained. You are so spot on when you say about our children being an inspiration as its jamie who has given me the strength to be there for him and not crumble. I tell everyone that all the while jamie is looking at me for comfort and support ill be just that,i get to break down when its all over,whatever happens though my boy has tought me so much,this whole journey has tought me so much and they are lessons i will carry with me all my life. It seems like we are a million miles away from any kind of results but at the moment im looking forward to my baby being back at home and dare i say trying to bring in a little normality back into our lives. Ill be sure to put any updates onto this site,i do have a group on facebook for him which i update on a regular basis too if you have access to it,its under jamie lacey.
again thankyou for your kind words,much luv janine.xxx
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