NEUROBLASTOMA TUMOUR

message: Hi Mariong
Just to say that if you need any extra information, you can call the CLIC Sargent Child Cancer Helpline on 0800 197 0068, and they will be able to help.
Take care

message: Hi Mariong

My son also has neuroblastoma stage 2 & was diagnosed at 15months of age that was september 2007, if you would like to talk anytime then my email is <email address removed>

So glad your daughter is doing well.
All the very best
Kim xxx

message: Hi Mariong

So nice to hear your daughter is doing so well. I so have a daughter that was diagnosed with a Stage 4 neuroblastoma tumour when she was 2 years and 2 months.
We havent had any scans for nearly 2 years now, and no one has mentioned about having any tests done on her organs.

message: hi mariong

My son was diagnosed with neuroblastoma stage 4 5 weeks ago he has a single lump above his left kidney behind the bowel and it has also spread to the bone marrow in his hips and 1 arm.
He is in the clinical trial and about to have his 4th dose of chemo, he seems to be responding well 5 weeks ago when he was first diagnosed he could not walk and was in alot of pain now he is up and running around like nothing was wrong with him.

I would be very interested to hear from anyone with a child with neuroblastoma. Many thanks clair

message: Sorry to hear about your son, but my daughter also couldnt walk when she was diagnosed, and found it quite hard to walk for the first 12 months of treatment. But if you were to see her now 4 years on you wouldnt know.

message: Sophie went to Yorkhill on 16 July for her normal clinic appointment but also I had a cheque to present to the Schiehallion ward and Sophie wanted to see the ward where she had spent so much time. So Sophie, her dad and I went into the Schiehallion ward for the first time since Oct 2003, although we go the hospital all the time we had never been back to the ward. I was a nervous wreck as I thought Sophie would ask so many questions about the children as it happened we had a great time. Went into the playroom where there was a magician and a handful of children and Sophie loved the ward! (She has no recollection of it tho). Things looking good her MRI scan results unchanged and come this October she will have kidney/heart/MRI scans etc basically checking all her organs to see how the chemo may have affected them as we are now 5 yrs since end of treatment. So we're all very happy.