cancer 3 times in 3 years

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Main Content: cancer 3 times in 3 years

 

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Original topic post: cancer 3 times in 3 years

written by: adam6767
posted: 17.04.2008

message: hello my name is adam. I was diagnosed with an osteosarcoma in my right knee when I was 20 years old. After undergoing various scans, tests and biopsy’s (which felt never ending) I finally started a high dose of chemo. I had 3 months of chemo then there was talk about having surgery. First the doctors said that they were going to give me a knee replacement, but then bad news, the doctors said that it was to late I was told that I had to have an above knee amputation. Shock!!! I was alone in hospital away from my family and friends when I was told this. I didn’t know how to react. I can remember closing my eyes and telling myself, I can live without a leg if it’s going to save my life. Surgery came the day after my 21st birthday. (Tuesday) Awake from surgery I looked down I didn’t feel upset, I had my family sitting around my bed. I was so determined to get on with things and prove I was no different than anyone else. I was out the bed the next day learning to control my balance and walking on crutches. (Friday) on my way home for a few weeks to recover. Even though it was a shock being told that I was going to have to have an amputation, nothing prepared me for the phantom pain. It was horrible – no sleep – my whole body shaking because of the amount of pain, I took a number of pills that were meant to help but nothing helped. All I had was my willpower to get back to a normal life. My rest period was over back to the hospital for another 6 months of the dreaded chemo. At last the day came where my cycle had finished. I decided to go and get fitted to an artificial leg and within 10 day I took home my new leg. A few sessions of physio and I was walking, had a limp but that was expected. I decided it was time to go back to work. I was enjoying doing the normal day-to-day things and being out of hospital. But another blow I had been back to work for 1 year then had to leave the cancer came back into my left lung, as before back to hospital for more chemo, and more surgery. I had to have some of my lung removed, as there were two tumours at the bottom. After surgery I was into immense amount of pain, I was put on very strong painkillers. I was home after a week but as I was taking very strong painkillers my bowel decided to stop working and it burst. I was rushing into my local hospital for emergency surgery, the surgeon said that if I had been 30 mins later I would have been dead. I was in hospital 11 weeks, 1 of those weeks I was in intensive care. I those weeks I was on many different drugs and drips, my tummy was let open as I had to keep going to surgery for my insides to be washed out. Whilst in hospital I caught two superbugs, GRE and MRSA, this meant I had to be isolated. Also I was diagnosed with osteoporosis this was caused because of all the chemo and steroids I had in the past. Home at last but it wasn’t for long just recently I was told that another tumour had come back under my left lung at that it also has gone to my right eye. I am waiting to start 3-4 weeks course of radiotherapy. I am 23 years old now and hoping to live a lot longer yet. I can honestly say that I have always had a smile on my face. Life throws obstacles at you that you don’t want, just throw them right back. If anyone wants to talk or need any help with understanding cancer or want some tips of how to get through amputation, chemo, phantom pain or anything else.


Reply 1: Inspiration!!!

written by: Adzilla
posted: 17.04.2008

message: hello adam, my name is also adam. i am from Wales and had nasopharyngeal carcinoma at the age of 15. i am now 16. my life was halted. after reading ur story i felt like i had nothing compared to you. You are a true inspiration to everyone in my eyes. how are you? hope to here from you soon XX :) adam


Reply 2: journey

written by: adam6767
posted: 17.04.2008

message: Hey Adam. We are all on the same journey no matter what type of illness/ cancer we have. Cancer is hard to cope with, but having people around you helps a great deal. Having cancer has opened up my life. I used to be quite shy but now I prefer talking to people especially if they are on the same boat as you, or just people that want to just learn more. I’d rather people ask questions than stare or take pity. If I can do anything to help or you have any questions just shout. All the best


Reply 3: thanks!!

written by: Adzilla
posted: 18.04.2008

message: i have become more of an open person as well since going through cancer. u seem like a very goodperson and that is a good attribute these days. how did you feel when being told you had it again? speak to you soon


Reply 4: being told that you have cancer.

written by: adam6767
posted: 18.04.2008

message: When I was told that I had cancer I didn’t know what to do. First I told all of my family and friends that I had cancer, I said to them I don’t want anyone to treat me any different. If I need help doing anything ill ask. I didn’t really know what cancer was when I was told, I knew what it could do but I wasn’t really that scared. I hadn’t been in hospital since I was born, that’s what worried me the most I had to go to a hospital in London as I needed a high dose of chemo and the hospital where I live didn’t do it. It was hard being away from my family and friends I would spend a week at a time in hospital and only having a few days off in between. The first time I went to go and have chemo there were two other lads with the same cancer as me. They were a few months ahead of me in their treatment and they both told me what to expect which really helped. It was better hearing it from someone that has had the chemo rather than a doctor telling you what to expect. The second time I was told I had cancer again was more of a shock than the first because I had been in the clear for over a year and I was feeling great. But one day I was putting in a new driveway on my house, (which took quite a time, mixing concrete standing on one leg is harder than it looks lol). Then all of a sudden I collapsed, I couldn’t breathe properly but luckily I had my mobile in my pocket and I phoned for an ambulance. I was taken to hospital, I had a x-ray, the doctors said that they could see a dark patch in my left lung, so I knew deep down it had come back, before I was actually told. There was a build up of fluid in my lung, I had to have 7 litres for fluid, which looked like cherryade drained out so that the surgeons could see the two tumours. I had to go to London last week to see my consultant, I was going up there to gets some CT scan results. I always expect the worst because it prepares you if it is bad news, and it was. My reaction this time was that I smiled and said to the consultant “well I’ve done it twice before and I’m still here I’m sure I can do it again”. As I said before I’m waiting to go for radiotherapy so I’m just getting on with life and doing what I can as much as the pain will let me. How did you feel when you were told, did you have to go far for your treatment. Speak soon hopefully.


Reply 5: about me!!

written by: Adzilla
posted: 21.04.2008

message: well when my parents were told i didnt really know because i was so ill that i was sleeping throygh the chemo. but my parents were devastated. what got me through was staying mentally positive and i fpund that it helped a lot. another thing whiuch helped me was i was in a room with another boy the same age as me so i could interact with him. i am know good friends with him. i had to travel to cardiff about 50 miles from where i live so it wasnt that far. i was in hospitel for a weeek at a time as well but i had 2 weeks off before the next chemo session and i had three of them. my gf had osteosarcoma and i am worried for her after reading ur story????


Reply 6: Courage!!

written by: brsscw50
posted: 21.04.2008

message: I log into this web site every now and then, just to touch base with other people who are going through the ordeal of childhood/young persons cancer. I have a 13 year old daughter who is, all being well, at the end of a year of chemotherapy and radiotherapy for rhabdomyosarcoma. She will have scans in a few weeks time and we are praying so hard that she is in remission.
I am filled with awe and admiration for how you young people cope with the horrors of diagnosis and treatment and I can only thank you for having the strength to keep yourselves and your families going! I know that, at times, it has been my daughter's courage that has enabled me to face yet another day of uncertainty, treatment or side effects - I feel quite ashamed to admit that!
With very best wishes for your treatment and recovery.
Daisy


Reply 7: Adzilla

written by: adam6767
posted: 01.05.2008

message: Hello adam, so sorry its taken me a while to reply been in a lot of pain recently and haven’t been up to doing much, but I’ve been to the doctors and told them to up my painkillers which they have, so far so good no pain (touch wood as the saying goes). I’m so sorry to hear about your girlfriend, where is the Osteosarcoma if you don’t mind me asking, because most of the people I’ve spoken to they have had it in their legs. Has she started any treatment or do you know what type of treatment she will have. Just because my story is quite shocking, I wouldn’t worry, it will only make yourself feel ill and also it will worry your girlfriend more. Try and be strong for her, because it will make her feel happier and it will be easier for both of to cope. I’ve just had bad luck on my side, but all of the people that I’ve spoken to with an Osteosarcoma have all recovered with chemo or with some sort of operation, and had the all clear. I start my radiotherapy in two weeks; I’ve got a three-week course. Not looking forward to all the travelling the hospital I’m having it done is about 20 miles away. All the best for you and your girlfriend, remember I’m here if you both have any questions. Adam.


Reply 8: (No Subject)

written by: Adzilla
posted: 12.05.2008

message: my girlfriend has recovered from the cancer but i am worried that 2nd stage might occur. she has been in remission for 3 years nearly! but when you love someone oyu do notwant anyhting to happen to them. thanks for the advice. hopw you are feelking ok nd i am always thinkin of you. speak to you soon!!!!


Reply 9: adam sorry havent been in touch.!!!

written by: adam6767
posted: 28.05.2008

message: Sorry I haven’t replied to you in a while but I started radiotherapy a couple of weeks ago, at the moment I just feel really tired been sleeping long hours and what time I do spend awake I am in loads of pain. I cant sit or stand for very long I have to lye all of the time, the pain seems to be a lot less when I do. I have got one more week left and then the treatment should be finished (well fingers crossed) them I have to go up to London for a scan to see if there has been any change.

I know its hard not to think about is the cancer going to come back in yourself or someone you love, but you have to try and make the most of life. Otherwise you could make yourself depressed and if your girlfriend sees that your worrying it might her worry more and feel more upset. As you know once you have a big blow in your life its hard to think positive but do try.

I really do hope all is well your end looking forward to hearing from you, take care.

Best wishes Adam


Reply 10: thanks

written by: Adzilla
posted: 09.06.2008

message: i will try my best. thank you for all the advice you have given me. i am glad everything is goin well for u. i will have my fingers crossed for uas well. i am sorry i have taken a long time to reply my internet has been down. hope to hear from u soon and i hope everything is ok with u!! take care.


Reply 11: hello!

written by: Adzilla
posted: 07.01.2009

message: hey adam. howr u? i hope your doing well!! how is everything! i hope to hear from you soon!! best wishes adzilla x



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