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Home > About childhood cancer >The news that over 70% of children and young people with cancer will survive their illness is encouraging. There are now more than 20,000 survivors of childhood cancer in the UK, all of whom need some form of ongoing care and support. After treatment is completed, CLIC Sargent continues to help survivors of childhood cancer, both in treatment and in remission.
Yet survival often comes at a price.
Survivors face major challenges as a consequence of their treatment - medically, emotionally and socially.
If you are a survivor of childhood cancer you may have health worries, problems with your heart, lungs, kidneys. Infertility is another issue, as is the possibility of reduced employment opportunities and missed education. Not to mention possible changes in your social life.
We welcome any suggestions about information you would like to see on this website. Please email our child cancer helpline with your comments, or add your story and experiences to the website for others to read.
New for 2008 - Survivors Information Needs Questionnaire
We are carrying out a Survivors' Information Needs Questionnare to help us understand the issues that you face, so that we can improve the information we provide to people affected by childhood cancer - including survivors. If you would like to take part in this, please visit our Survivors' Information Needs Questionnare page. Thanks!
Below is a list of useful web links for survivours of childhood cancer.
top of pageAftercure
This is a website for teenagers who have cancer and survived from cancer. There are many good links to other charities and organisations including fitness testing needed to undertake sport. It also includes what to do and how to get on with life with or without cancer e.g. education and jobs, lifestyle – how to keep healthy, fertility and sexual function, travel/vaccinations, life insurance and mortgages.
top of pageBirmingham Study Centre, University of Birmingham
Survivors' Helpline.
Helpline: 0800 328 9419
(Mon - Fri, 9am - 6.30pm)
top of pageICCCPO (International Confederation of Childhood Cancer Parent Organisation)
These annual meetings, run by survivors, for survivors provide an opportunity for people from all over the world to meet and learn about issues related to their disease and its treatment. ICCCPO is a good place to hear about how survivors groups work in different countries, and get ideas about how to start a survivors group. Besides being informative, these conferences provide the opportunity to meet and make friends with people with similar experiences.
Tel: +31 30 242 2944
Fax: +31 30 242 2945
Email: icccpo@vokk.nl
Web: http://www.icccpo.org
Address: ICCCPO Secretariatc/o VOKK, Schouwstede 2d. 3431 JBNieuwegeinNETHERLANDS
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