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Home > About childhood cancer > Online Community >This page will show a list of the stories that have been added. If you want to share your experiences please register to add your story. If you are already registered, please log in.
We hope that over time, there will be a whole host of experiences for others to read and gain strength from.
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Showing 1 - 5 of 45 items:
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Recieving the knews
Name: Phia
User Type: Teenager or Young Adult With Cancer
Condition: Osteosarcoma
I was told I had an osteosarcoma in my knee on 12th December 2008 I was totally shocked as I never thought that I would ever get cancer let alone as a child. I had my hycman line fitted and a week later started chemotherapy on 27th December. I had 3 months of chemo before I was told I was ready to have my operation. The operation consisted of having the tumor and the bone in my leg removed and replacing it with some sort of metal. They were thinking that because I am quite tall I might be able ...
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Empowerment
Name: festa
User Type: Survivor
Condition: Ewing's Sarcoma
I was 14 when was diagnosed with a Ewing's Sarcoma on my chest after six months of visiting my GP. During this period I was thought have, Asthma that had re-occurred in adolescence, scoliosis (curvature of the spine) and costocondritis (inflammation of the muscles between the ribs. Still convinced it was Asthma, my GP referred me to an Asthma consultant. He listened to my chest and straight away sent me for some x-rays, which revealed that I had a tumour the size of a rugby ball on the right ...
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My journey.
Name: Tizzy
User Type: Survivor
Condition: Retinoblastoma
I was diagnosed with bi-lateral retinablastoma when I was a few weeks old. I had my left eye removed in 1980 and then had treatment on my right eye. Though my sight has gotten worse over the eyes and I am now registered blind at 29 years of age. For years I was always so aware of feeling and maybe looking different, but now I look and think, well if I didn't look just this little bit different then I wouldn't be here and thank the doctors. For all my problems over the years, I still like ...
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My nightmare
Name: michele
User Type: Parent or Guardian of Child With Cancer
Condition: Other Tumours
when my 16 yr old daughter Courteney-paige told me in sept 2008 that she was going to have a baby I thought what could be worse! That was until 30th Jan 2009, I was told on that day that my pregnant daughter had cancer! The words Metastic Malignant Melanoma became my most hated words. We were told that Courteney-paige had 18-24 months left & that she needed surgery on her neck to remove a lymph node that had become infected. The surgery was to take place the following friday feb 6th, ...
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world turned upside down
Name: dieseltonypaige
User Type: Parent or Guardian of Child With Cancer
Condition: Acute Lymphobalstic Leukaemia
On 24th nov 2007 our 5 year old daughter paige was diagnosed with suspected leukemia and was transfered to southampton general hospital.
On the 25th Nov she was confirmed to be diagnosed with T cell ALL and was started on chemotherapy that day under the guidelines of UK ALL Regimen B. she had a single lumen line inserted on 27/11/08. our world had been turned upside down, we had only taken her to the doctors for a cough and looking pale. we were in no position to be told she had ...